Neuropathy and other strange symptoms

Posted by jola65 @jola65, Jun 15, 2019

I’m going to mayo in a few weeks, but I thoughtI’m I would write about my symptoms here to see if anyone has experienced something similar. I have burning and tingling in my arms and legs. It feels like there is an electric shock running through my body at all times. This has been going on for almost 10 years now, and when it began I also developed vertigo and I’m unsure if that has any relation. I have various food sensitivities, trouble sleeping, brain fog, constipation, and tinnitus. These symptoms all started together, and I’m not sure if they’re all related but it seems as though they are. The pain is nonstop, although it has lessened and worsened on and off over time. If anyone has any similar symptoms or any advice please advise!! Thank you for reading.

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@vradifegari

Vradi @vradifegari -- I am skeptical of the claims but I've been burned so many times on miracle cures by wasting money on something that didn't work that anytime I see ads like this one I'm very doubtful. When I'm in doubt I try to evaluate using a few references I've found useful.

Quazar's guidance about avoiding scams and snake oil cures
-- https://connect.mayoclinic.org/discussion/how-to-avoid-quacks-and-snake-oil-treatments/

FDA's Health Fraud Page
-- https://www.fda.gov/ForConsumers/ProtectYourself/HealthFraud/ucm539101.htm

NIH's National Center for Complementary and Integrative Health (NCCIH) which offers guidance about integrative health and how to evaluate it.
-- https://nccih.nih.gov/health/decisions

The first thing that caught my eye on the label of the product were the four check marks to what it helps. At the end of each checkmark is an asterisk(*) which usually is used to reference a disclaimer but I could not find one. In the end it might boil down to cost. If it's not expensive and I'm really hurting that may convince me to try it. Maybe other members have had some experience they can share with you on the product.

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I don´t know that particular one, but I do take Alpha Lipoic Acid, recommended by Dr. Antonio Aldrete, when diagnosed with Arachnoiditis. Also by a neurologist who works at a specific neurologic clinic in Sarasota, Florida. He vouched for it being of use in terms of neurology. I have no idea what the other ingredients are as I couldn´t read the label too well. Alpha Lipoic Acid is for sale in health food stores and even drugstores. For whatever it´s worth.....Once a legitimate MD recommends a supplement I tend to trust that it couldn´t hurt.

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Oh, yes, it´s an antioxidant and also used in problems related to nerve pain....just looked it up.....

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@joanmahon

I don´t know that particular one, but I do take Alpha Lipoic Acid, recommended by Dr. Antonio Aldrete, when diagnosed with Arachnoiditis. Also by a neurologist who works at a specific neurologic clinic in Sarasota, Florida. He vouched for it being of use in terms of neurology. I have no idea what the other ingredients are as I couldn´t read the label too well. Alpha Lipoic Acid is for sale in health food stores and even drugstores. For whatever it´s worth.....Once a legitimate MD recommends a supplement I tend to trust that it couldn´t hurt.

Jump to this post

I take a lot of the supplements listed in product but I know the quality of the ones I take and I'm not sure about the ones and the amount of each one listed in the product. ALA as listed on the bottle probably contains at least 50% of the synthetic version which I think inhibits any kind of value of the natural ALA. I take 100% R-ALA - 1200 mg daily along with my other supplements. Here's some references for ALA.

Different Forms of Lipoic Acid: What You Need to Know
-- https://geronova.com/consumers/different-forms-of-lipoic-acid/

Alpha Lipoic Acid
-- http://lpi.oregonstate.edu/mic/dietary-factors/lipoic-acid

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@vradifegari

@vradifegari
Hi there,
Just my uneducated opinion but but I save my time and money. I get emails every day on Neuropathy, Cancer and Diabetes cures. Don’t you think that if they worked it would be recognized in the mail stream medical community and plastered all over the news. I think the sellers of these products are lacking the most important ingredients Integrity and conscious.
The only thing that ever helped me was the pain medication Fentanyl and that didn’t help much. I’ve taken all the seizure meds for Neuropathy from low to maximum doses and nothing. That’s not to say they don’t work in some people. Also I believe a lot of people may get relief from the the Placebo effects of this junk, in my opinion. My thought is these people may only have very mild symptomatology that isn’t that distressing in the first place. Maybe I’m overly skeptical.
I hope you find relief.
Jake

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have you had MRI with contrast if so Google gadlinium poising

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Hello. Nice Sunday:
Do any of you know if Garcinia Gambogia used for lost weight can be a cause of Neuropathic pain?
I ask because on Febrary of 2012 I took a high dose and the label sayd "it burs liver fat". By June It started strong pains like crystal burning in my legs and I went on fisiotherapy which I stopped cause put me worst. Then on September was the Dengue fver and in 2015 my accident on stair. But I think garcinia gambogia the first thing in damage my neves.
I am searching on google, but pain does not allow me to be much time. If you have any notices about this. It will be very helpful.

Love for everyone,
Vradi

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@jakedduck1

@vradifegari
Hi there,
Just my uneducated opinion but but I save my time and money. I get emails every day on Neuropathy, Cancer and Diabetes cures. Don’t you think that if they worked it would be recognized in the mail stream medical community and plastered all over the news. I think the sellers of these products are lacking the most important ingredients Integrity and conscious.
The only thing that ever helped me was the pain medication Fentanyl and that didn’t help much. I’ve taken all the seizure meds for Neuropathy from low to maximum doses and nothing. That’s not to say they don’t work in some people. Also I believe a lot of people may get relief from the the Placebo effects of this junk, in my opinion. My thought is these people may only have very mild symptomatology that isn’t that distressing in the first place. Maybe I’m overly skeptical.
I hope you find relief.
Jake

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Jake as with many of us who suffer from disease and other maladies, you are the Best Doctor. We need to listen in closely what our bodies are trying to tell us! With the electronic age we are so lucky to have information at our finger tips!
There is a wealth of information out there! Some of it good and some that is bad! By researching and reading it will elavate your understanding of the good and the bad.
Try many different sources, not just one!
This past year with my disease fight I have learned to not take a medical person at their word. How would they react is they had your symptoms?
Know what meds help you! Try things that may have helped others. If you try them, know how you feel! If you have feeling of depreession or other things that are not normal for you, talk to your doctor, but more that that understand what your body is saying to you.
Sundance(RB)

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@vradifegari

Hello. Nice Sunday:
Do any of you know if Garcinia Gambogia used for lost weight can be a cause of Neuropathic pain?
I ask because on Febrary of 2012 I took a high dose and the label sayd "it burs liver fat". By June It started strong pains like crystal burning in my legs and I went on fisiotherapy which I stopped cause put me worst. Then on September was the Dengue fver and in 2015 my accident on stair. But I think garcinia gambogia the first thing in damage my neves.
I am searching on google, but pain does not allow me to be much time. If you have any notices about this. It will be very helpful.

Love for everyone,
Vradi

Jump to this post

Hi Vradi @vradifegari, I haven't found any references to side effects of Garcina Gambogia that might cause neuropathy pain but that may or may not be true. Here are a couple of warnings I found that may help.

Dangerous dietary supplements: Garcinia cambogia-associated hepatic failure requiring transplantation
-- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5143754/

Troubling New Potential Garcinia Cambogia Side Effect
-- https://www.consumerreports.org/vitamins-supplements/troubling-new-garcinia-cambogia-side-effect/

RXList.com - What Are Side Effects Associated with Using Garcinia?
-- https://www.rxlist.com/consumer_garcinia/drugs-condition.htm#what_are_side_effects_of_garcinia

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