How do you deal with dry eyes?

Posted by maryy @maryy, Jun 10, 2019

I have dry eyes due to sjogren's syndrome. Does anyone else deal with dry eyes?

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@rwinney

Well guys, I asked my doc for Restatis today and it came in at $540 (my portion) for a 90 day script. Disappointing. I'm on Medicare with a Blue Cross Plan G supplement insurance. Not favorable to my budget so scratch Restatis. Maybe next year when I can switch to a more accommodating drug plan.

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@rwinney - Yikes! That is awful.

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@johnbishop Yes, it is John. It happened with my migraine self injection medication as well, over $500 which I declined. My neurologist came up with another solution which was a brand new, FDA approved in Feb, migraine infusion in the hospital verses through a pharmacy. He claims the billing should be more in my favor. Fingers crossed on that one as I await the EOB. The only reason I'm on this Plan G supplement plan is so I could be accepted at Mayo and go out of state/network. Otherwise Mayo would not have accepted just Medicare.

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@marye2

I have the same. Takes daily maintenance. For dry mouth: brush 2X daily for gums and teeth; waterpik once a day; xylimelts or biotene.
Dry eyes: gently scrub eye lids in the morning; systane liquid tears; PM ointment at night; RX for pataday. I am finding that an eye mask at night helps keep moisture in.

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Another one for Systane for the eyes and Biotene for dry mouth.
Frequent Hydration helps.

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Dr. Latkaney, an authority on dry eyes took me off restasis and systane and put me on Muro 128 night ointment which solved my dry eye problem. Muro 128 is OTC is $28 at Walgreen's. Try it.

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@rwinney

Well guys, I asked my doc for Restatis today and it came in at $540 (my portion) for a 90 day script. Disappointing. I'm on Medicare with a Blue Cross Plan G supplement insurance. Not favorable to my budget so scratch Restatis. Maybe next year when I can switch to a more accommodating drug plan.

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@rwinney That's why I use preservative free drops I looked into it but drug companies are gouging people I can't get my lidocaine 5% patches for this reason

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@singalsk

Dr. Latkaney, an authority on dry eyes took me off restasis and systane and put me on Muro 128 night ointment which solved my dry eye problem. Muro 128 is OTC is $28 at Walgreen's. Try it.

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Thank you singalsk, I will obtain Muro 128 today

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I am paying 56.00 for one bottle of eye drop I have to use every day That is after insurance

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Adding my two cents: moving to southern Arizona in the desert and my dry eyes were getting much worse. Just spoke with opthamologist's office and I will try Refresh Mega 3 ointment, Systane nighttime gel at night - my eyes are extremely dry in the morning - and Aquaphor on my eyelids as they are very sensitive. I have a feeling this will work!

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I use celluvisc, serum eye drops, and gel. Anyone have blepharitis? Mine eye issues are autoimmune related. I think of all things, serum eye drops help the most...

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@estrada53

Adding my two cents: moving to southern Arizona in the desert and my dry eyes were getting much worse. Just spoke with opthamologist's office and I will try Refresh Mega 3 ointment, Systane nighttime gel at night - my eyes are extremely dry in the morning - and Aquaphor on my eyelids as they are very sensitive. I have a feeling this will work!

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@estrada53 Welcome to connect this group is very caring and helpful with what works for them I too have dry eye worse since I moved to SOCAL when the Santa Anna winds blow worse yet I use a preservative free drops during day and a nitetime ointment which helps but will try Refresh at night

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