1. < Fibromyalgia

Fibromyalgia: How do you cope?

Posted by sandymom @sandymom, Mar 8, 2019

Since 1983 fibromyalgia has cost me my job home life. Daily struggles. One day up next down. What to do to cope? See psychiatrist med nurse pcp etc. let me here your story the sufferings this has caused. Any help please!

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

Parus | @parus | Mar 19, 2019

@karen00 What good news. Must be a happy feeling to be going home soon.

REPLY
1 reply
Jen, Alumna Mentor | @sandytoes14 | Mar 19, 2019
In reply to @parus "@sandytoes14 It surely does hurt. I get the line of how I am making excuses. Worse..." + (show)
@parus

@sandytoes14 It surely does hurt. I get the line of how I am making excuses. Worse yet I am depressed and feeling sorry for myself. There are people I have needed to shut out of my life. I am better because I have done so.
I am sorry about those suffering from this illness which is more of an affliction. It helps to know my symptoms are not imagined. Sorry to have company but thankful. Today has been better. I was able to be out in the sunshine and it felt lovely.

Jump to this post

@parus I'm so glad and feel lucky to have you, @lioness, @grandmar and a few others as friends who understand. I never feel judged by what I say. I'm really happy to hear you had a good day! Sunshine is a wonderful healer!

REPLY
Parus | @parus | Mar 19, 2019
In reply to @gingerw "@parus In my volunteer job I shared a little bit bout my maladies with the supervisor...." + (show)
@gingerw

@parus In my volunteer job I shared a little bit bout my maladies with the supervisor. She also has things that are going on with her but she does a good job masking, so she could completely relate. She always double-checks with me before passing on a new/different task just to be sure it is something that I'm okay with. Of course she knows by now that I rarely am going to say no! I am concerned about the training I have coming up in 3 months because I don't know what my physical quality of life will be at that point. Today I feel to be pretty good but I know it's not as good as it was three years ago five years ago 10 years ago. I can only hope that the stress of flying cross-country in the middle of the night and five days of intensive workshops and training is not going to throw me completely into a flare and make it impossible to work with for several weeks.
Ginger

Jump to this post

@gingerw I was wondering about thus since these flares are unpredictable. Where will you be going for these classes?? Are you practicing any??

REPLY
1 reply
Parus | @parus | Mar 19, 2019

Hoping all my fibro friends rest well. We are all special in our own ways.

REPLY
Mentor
Ginger, Volunteer Mentor | @gingerw | Mar 19, 2019
In reply to @parus "@gingerw I was wondering about thus since these flares are unpredictable. Where will you be going..." + (show)
@parus

@gingerw I was wondering about thus since these flares are unpredictable. Where will you be going for these classes?? Are you practicing any??

Jump to this post

@parus The training is in Providence, RI. Long way from home as I am in Coastal California. I will be trying to bank my energy, but as we all know that's not really possible to do. Since it is a Friday night red eye out of here I'll be able to rest hopefully. But I haven't done any flying for almost 15 years. Imagining that I will have to talk myself down from stress. I have a booked a room to myself so that I can escape the pressures of groups and noise in order to relax and regroup. Being on the spectrum is not easy for me to take tackle this training.
Ginger

REPLY
1 reply
lioness | @lioness | Mar 19, 2019

@gingerw I can easily shut people out are you able to by selective hearing My husband got mad at my son and me we both can do that Can you tdownload ypir favorite music and use your earbuds to relax I wish you well Let us know when your going we will gather our cyber energy for you

REPLY
1 reply
karen00 | @karen00 | Mar 20, 2019
In reply to @parus "@karen00 What good news. Must be a happy feeling to be going home soon." + (show)
@parus

@karen00 What good news. Must be a happy feeling to be going home soon.

Jump to this post

@Parus Hey Parus, it’s also s scary feeling. Can I do the ramp? Will I be able to negotiate going outside and getting in car? AS

REPLY
1 reply
Parus | @parus | Mar 20, 2019
In reply to @gingerw "@parus The training is in Providence, RI. Long way from home as I am in Coastal..." + (show)
@gingerw

@parus The training is in Providence, RI. Long way from home as I am in Coastal California. I will be trying to bank my energy, but as we all know that's not really possible to do. Since it is a Friday night red eye out of here I'll be able to rest hopefully. But I haven't done any flying for almost 15 years. Imagining that I will have to talk myself down from stress. I have a booked a room to myself so that I can escape the pressures of groups and noise in order to relax and regroup. Being on the spectrum is not easy for me to take tackle this training.
Ginger

Jump to this post

@gingerw WOW!! Definitely a challenge!! I can no longer travel and even thinking of all of this wears me out. That is a long way from home. What an adventure!! I am excited for you.

REPLY
Mentor
Ginger, Volunteer Mentor | @gingerw | Mar 20, 2019
In reply to @lioness "@gingerw I can easily shut people out are you able to by selective hearing My husband..." + (show)
@lioness

@gingerw I can easily shut people out are you able to by selective hearing My husband got mad at my son and me we both can do that Can you tdownload ypir favorite music and use your earbuds to relax I wish you well Let us know when your going we will gather our cyber energy for you

Jump to this post

@lioness Just the opposite of selective hearing, I hear everything, and can follow several conversations at once. Guess that's why I was a good dispatcher. Calming down usually involves becoming very quiet for me rather than even having soft music on. The good thing is that I know what works for me just that I have to avail myself to it.
Ginger

REPLY
lioness | @lioness | Mar 20, 2019

@ginger We are all different are,nt we Well glad you know what helps you use all those tools in your health box I use to like to fly but havent for 10 years that,ll be an exciting trip for you ,wont see much on the red eye hope you can sleep I have to use a sleep mask light keeps me awake would it on a plane help

REPLY
View MoreView Less
Please sign in or register to post a reply.