1. < Hearing Loss
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Hearing Loss: Come introduce yourself and connect with others

Posted by Colleen Young, Connect Director @colleenyoung, Feb 5, 2019

Welcome to the Hearing Loss group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with hearing loss, and friends and family supporters. Whether you were born deaf or hard of hearing, experienced hearing loss after birth or with aging, it helps to connect with others. Together we can learn from each other, support one another and share stories about living with hearing loss, coping with challenges and celebrating milestones.

Let’s chat. Why not start by introducing yourself? What is your hearing loss experience? Got a question, tip or story to share?

Interested in more discussions like this? Go to the Hearing Loss Support Group.

lioness | @lioness | Apr 30, 2019
In reply to @mamanring "Hello! I am Mary Anne and I suffered Sudden Hearing Loss in my left ear about..." + (show)
@mamanring

Hello! I am Mary Anne and I suffered Sudden Hearing Loss in my left ear about 20 years ago. The loss was moderate and the hearing I had in my right ear compensated. About 3 years ago, with decrease hearing in my right ear, I got hearing aids. This past February I suffered Sudden Hearing Loss in my right ear. I now have bilateral hearing loss that is moderate to severe. The tinnitus in my right ear is awful. I am trying to cope with this new reality.

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@mamanring Sorry you have lost your hearing I have had TINNITUS seems like forever I use a h.a. in my R.ear only so far my L ear is o.k.

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ciblue | @ciblue | May 1, 2019
In reply to @lioness "@ciblue That is wonderful they both are good now My R. Ear is worse then my..." + (show)
@lioness

@ciblue That is wonderful they both are good now My R. Ear is worse then my left I wear H A in both but have had ,still do have TINNITUS Do you have TINNITUS or did you ?

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My tinnitus has never been bad. I still have it, but rarely notice it, especially when I'm wearing my CI processors.

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1 reply
lioness | @lioness | May 1, 2019
In reply to @ciblue "My tinnitus has never been bad. I still have it, but rarely notice it, especially when..." + (show)
@ciblue

My tinnitus has never been bad. I still have it, but rarely notice it, especially when I'm wearing my CI processors.

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@ciblue Mine hasn't been bad when I'm busy I don't notice but it's when I'm quiet at night sometimes it's so loud I can't stand it but wearing h.a. help I think .

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bonnieinarizona | @bonnieinarizona | May 2, 2019

Hi, I am Bonnie and experienced sudden sensorineural hearing loss (SSHL) about 9 weeks ago. My loss went from mild at high frequencies to moderate-severe (around 60 db) for all frequencies past 1000 Hz. I have tinnitus - and that is my main issue. I have a good Right ear -- so I could probably compensate ok (still have ~70% of word understanding at 40 db) if it weren't for the tinnitus. My ENT said I could wait 3 months before getting a hearing aid, but seriously, the tinnitus is so bad that, forgive me, I am not sure I can live with it forever. Any suggestions/experiences with which aids help with tinnitus? Does anyone here have the new Phontac titanium B?

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3 replies
mari | @mari | May 2, 2019
In reply to @bonnieinarizona "Hi, I am Bonnie and experienced sudden sensorineural hearing loss (SSHL) about 9 weeks ago. My..." + (show)
@bonnieinarizona

Hi, I am Bonnie and experienced sudden sensorineural hearing loss (SSHL) about 9 weeks ago. My loss went from mild at high frequencies to moderate-severe (around 60 db) for all frequencies past 1000 Hz. I have tinnitus - and that is my main issue. I have a good Right ear -- so I could probably compensate ok (still have ~70% of word understanding at 40 db) if it weren't for the tinnitus. My ENT said I could wait 3 months before getting a hearing aid, but seriously, the tinnitus is so bad that, forgive me, I am not sure I can live with it forever. Any suggestions/experiences with which aids help with tinnitus? Does anyone here have the new Phontac titanium B?

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My tinnitus is mild so I drink Distilled water when it happens. And avoid salt.

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lioness | @lioness | May 2, 2019
In reply to @bonnieinarizona "Hi, I am Bonnie and experienced sudden sensorineural hearing loss (SSHL) about 9 weeks ago. My..." + (show)
@bonnieinarizona

Hi, I am Bonnie and experienced sudden sensorineural hearing loss (SSHL) about 9 weeks ago. My loss went from mild at high frequencies to moderate-severe (around 60 db) for all frequencies past 1000 Hz. I have tinnitus - and that is my main issue. I have a good Right ear -- so I could probably compensate ok (still have ~70% of word understanding at 40 db) if it weren't for the tinnitus. My ENT said I could wait 3 months before getting a hearing aid, but seriously, the tinnitus is so bad that, forgive me, I am not sure I can live with it forever. Any suggestions/experiences with which aids help with tinnitus? Does anyone here have the new Phontac titanium B?

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@bonnieinarizona Welcome Bonnie we here aren't Dr,s but can help with our experience. I've had tinnitus all my life but when I'm busy don't notice it About 4 yes ago I did get h.a. my R.ear is worse then left Seems like those that have h.a.have tinnitus also. I have Phonax h.a.they go behind your ear I think they have quieted my TINNITUS down but ENT Dr just told me there is no cure Good luck

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1 reply
bonnieinarizona | @bonnieinarizona | May 2, 2019
In reply to @lioness "@bonnieinarizona Welcome Bonnie we here aren't Dr,s but can help with our experience. I've had tinnitus..." + (show)
@lioness

@bonnieinarizona Welcome Bonnie we here aren't Dr,s but can help with our experience. I've had tinnitus all my life but when I'm busy don't notice it About 4 yes ago I did get h.a. my R.ear is worse then left Seems like those that have h.a.have tinnitus also. I have Phonax h.a.they go behind your ear I think they have quieted my TINNITUS down but ENT Dr just told me there is no cure Good luck

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thank you for your reply. Many people with sudden sensorineural hearing loss have tinnitus that is the same frequency as our hearing loss - the brain recognizes that there is a breakdown in the "circuitry" and trying to signal the inner ear (I am a scientist :)). I am seeing a hearing aid person today -- so I will report back what she says about the latest technology, I know there are several hearing aids that have implemented some sort of functionality that they say helps with tinnitus.

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1 reply
lioness | @lioness | May 2, 2019
In reply to @bonnieinarizona "thank you for your reply. Many people with sudden sensorineural hearing loss have tinnitus that is..." + (show)
@bonnieinarizona

thank you for your reply. Many people with sudden sensorineural hearing loss have tinnitus that is the same frequency as our hearing loss - the brain recognizes that there is a breakdown in the "circuitry" and trying to signal the inner ear (I am a scientist :)). I am seeing a hearing aid person today -- so I will report back what she says about the latest technology, I know there are several hearing aids that have implemented some sort of functionality that they say helps with tinnitus.

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bonnieinarizona Thank so much I will appreciate anything you can find out

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nicolet | @nicolet | May 2, 2019

Hi There! My 7 year old son has mild hearing loss. I'm having a hard time finding folks in a similar situation to bounce ideas off of. Is there a group you all would refer me to? Thank you!

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2 replies
katherinebouton | @katherinebouton | May 2, 2019
In reply to @nicolet "Hi There! My 7 year old son has mild hearing loss. I'm having a hard time..." + (show)
@nicolet

Hi There! My 7 year old son has mild hearing loss. I'm having a hard time finding folks in a similar situation to bounce ideas off of. Is there a group you all would refer me to? Thank you!

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@nicolet, the AG Bell Foundation is an excellent place for information about families and children with hearing loss. https://www.agbell.org/.

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