Hearing Loss: Come introduce yourself and connect with others

Welcome to the Hearing Loss group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with hearing loss, and friends and family supporters. Whether you were born deaf or hard of hearing, experienced hearing loss after birth or with aging, it helps to connect with others. Together we can learn from each other, support one another and share stories about living with hearing loss, coping with challenges and celebrating milestones.

Let’s chat. Why not start by introducing yourself? What is your hearing loss experience? Got a question, tip or story to share?

Interested in more discussions like this? Go to the Hearing Loss Support Group.

@colleenyoung, thanks for the invitation to join. My hearing loss began at age 27 when I was diagnosed with Meniere's disease. I went deaf in my left ear within 3 years of diagnosis. I went deaf in my right ear at age 48, also from Meniere's. At that point I was implanted with a cochlear implant in my left ear, and my right ear was implanted 1 1/2 years later.

With this being tinnitus awareness week, I would like to add that, although I am deaf, I have not experienced silence in 27 years.

Feel free to ask me anything about Meniere's or cochlear implants. I'm pretty much an open book on those subjects.

Dennis

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@contentandwell

@cobweb. That’s horrible! I can’t imagine living in an area where that was a problem. It sounds as if you no longer live there so hopefully where you live now has less pollution than tat.
JK

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After college i moved. Pittsburgh closed most of the steel mills with the loss of jobs. Mills are cleaner now. I retired from teaching at a college but hearing has gotten poorer after retiring. Still do public speaking but i realize i have to speak louder when i speak. Hearing was related to sinus issues over the year. Now its being realistic on what my hearing is , and hope for new innovations.

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Looking to join an online focus group today? 2/7 1pm ET. Thanks. Barbara Johnson

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@johnsonbarbara

Looking to join an online focus group today? 2/7 1pm ET. Thanks. Barbara Johnson

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i assume its over. signed on late.

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Hi. This is Sylvia. I experienced hearing loss in my left ear in my 50’s. Shortly after, I developed Ménière’s disease and have very little hearing in that ear.
I wear hearing aids in both ears and am fine with face to face conversation, but have trouble distinguishing words in a large room like a gym or swimming pool. This makes it difficult to follow instructions in exercise classes. I’m thinking possibly cochlear implants might help. Does anyone have experience with a cochlear implant?

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@johnsonbarbara

Looking to join an online focus group today? 2/7 1pm ET. Thanks. Barbara Johnson

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@johnsonbarbara Hi Barbara.
Are you looking for somethings specific or a group about hearing aids and hearing loss in general. This group has just started and we welcome you.
I have had a hearing loss for about 14 years, cause possibly aging but undetermined. In the last few years my clarity has suffered.
My daughter also has a hearing loss but hers was from infancy and whereas my loss is worse in high frequencies, hers is low frequencies.
I’m sure as this group gains momentum we will be able to answer questions you may have, if we can’t yet.
JK

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hearing aids mostly

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@salledell

Hi. This is Sylvia. I experienced hearing loss in my left ear in my 50’s. Shortly after, I developed Ménière’s disease and have very little hearing in that ear.
I wear hearing aids in both ears and am fine with face to face conversation, but have trouble distinguishing words in a large room like a gym or swimming pool. This makes it difficult to follow instructions in exercise classes. I’m thinking possibly cochlear implants might help. Does anyone have experience with a cochlear implant?

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@salledell , I lost my hearing to Meniere's and have bilateral cochlear implants. They have given me back my life. Ask me any questions.

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Hi, I'm a bi-lateral CI user since 1994 (and 2006 for 2nd); I've been profoundly deaf since age 4 but wasn't diagnosed until I was 10. I have many friends and colleagues within the d\Deaf communities and work and have connections with all.

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Hello, my name is Christina. I began losing my hearing in my late 50’s. Now am 74. It got progressively worse and I believe it may have a hereditary component. My paternal grandparents were deaf, only one congenitally, and my father began losing his hearing in his 40s. And deaf by my age. I had about 10% hearing and have felt truly handicapped. Then decided to explore Cochlear Implant. I had the CI surgery 3 weeks ago in my right ear. Now “deafer” since only left eat with HA. But I will be connected to the CI next week. And can let you know my progress if interested.

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