Just Diagnosed with Small Fiber Neuropathy

Pieface: you bet we Are headed to the pain free zone I can’t even imagine no more sickness no more tears no more pain - and no more sin! you probably feel like I do, I’ll be so happy when sinning is not our carnal nature any longer. Praise God! The fact he loves us enough to die for us is something I will never understand I almost feel like I’m not worth it but to him we are all worth it and he loves us all and he died for us and you bet he’s gonna come back for us! I know a lot of people probably think it’s silly but my faith gives me through all these hardships. I hang onto the saying ‘if he brings you to it he’ll get you through it’. And when my neuropathy starts to hurt me at a number 12 on a scale 1 to 10 (if you catch my drift) it hurts so bad I just freeze in my tracks and sometimes I start reciting the Lords prayer until it goes away and it always has, it just pray & cry. Sometimes it’s so hard to rejoice Him in our pain but it’s required of us. God bless you & take care

Jump to this post

@birdierobin I know what you mean about level 12 pain. My wife had an appointment with the orthopedist today, and what that means is a long day of shopping. Many of our doctors practice in Bend, an hour from home, so when we have an appointment there, it always includes Costco and 3 or 4 thrift stores and a restaurant or 2. Said all that to say that my feet are really burning and painful above my ankles. I put lidocaine cream on my feet, but I'm not sure it's going to help much. When the pain shoots past 10, it's time to turn my focus away from the pain. One way I deal with the pain is to focus on the feelings in my feet aside from the pain. I observe the tingling, which is way better than the pain. It's always interesting when I do that, what amazing power my brain has. We're created with unimaginable abilities, much of which we never access, but it's there whether or not we use it. Skin, our largest organ, has a natural ability to heal. Our eyes are essentially a small part of our brain and it exposes the brain to the environment. And the incredibly complex system of nerves - that's what we talk about a lot here - sometimes we can control them, sometimes they send us to our knees in tears and prayers.

The year I turned 50, my body started its decline. I was finally diagnosed with sleep apnea and started using a CPAP machine. That was a huge deal. Then my gall bladder function dropped to 14% and was removed. I started taking my first antidepressant. 40" of my small intestine stopped working and had to be removed. Then came bleeding ulcers. Then a mega toxic colon, had 80% of large intestine removed. Through all of that, depression and suicidal ideation and anxiety disorder and PTSD were having a heyday. I had to retire at age 55 on SS disability because I couldn't function any longer with the mental illness.

All of this is part of what I have to relive every time I have a new therapist. The first few sessions are telling my story. Telling and retelling the history of abuse and rejection and wanting to die dredges up the hurt of old wounds. So, every once in a while I take a leave of absence from Connect, while I make my way through the gunk. I'm thankful for the patience and understanding that the leaders of this group give me.

I can't help myself. I frequently get started writing and before I know it I've written way more than I intend.

Jim

Jump to this post

Pieface: you bet we Are headed to the pain free zone I can’t even imagine no more sickness no more tears no more pain - and no more sin! you probably feel like I do, I’ll be so happy when sinning is not our carnal nature any longer. Praise God! The fact he loves us enough to die for us is something I will never understand I almost feel like I’m not worth it but to him we are all worth it and he loves us all and he died for us and you bet he’s gonna come back for us! I know a lot of people probably think it’s silly but my faith gives me through all these hardships. I hang onto the saying ‘if he brings you to it he’ll get you through it’. And when my neuropathy starts to hurt me at a number 12 on a scale 1 to 10 (if you catch my drift) it hurts so bad I just freeze in my tracks and sometimes I start reciting the Lords prayer until it goes away and it always has, it just pray & cry. Sometimes it’s so hard to rejoice Him in our pain but it’s required of us. God bless you & take care

Jump to this post

please take your god and worship somewhere else. This is a place where people suffering from neuropathy pain daily.
we expect to hear about others suffering the same pain and what they have tried to make their lives bearable.

Jump to this post

please take your god and worship somewhere else. This is a place where people suffering from neuropathy pain daily.
we expect to hear about others suffering the same pain and what they have tried to make their lives bearable.

Jump to this post

Oh so your allowed to talk about which pain medicine to take for your pain but those of us that rely on our faith can’t talk about that? Sorry pal if you don’t like it, remove yourself. I refuse to let shallow people such as yourself tell me what I can and cannot talk about or which form of therapy works for some of us. Because it does work. You don’t deserve it for going against God but I will pray for you, and people like you cause you really need it. We are talking about neuropathy, and what works works for some of us dealing with it. Careful, your lack of compassion is showing thru your lack of faith. I will not denounce God.

Jump to this post

@birdierobin I know what you mean about level 12 pain. My wife had an appointment with the orthopedist today, and what that means is a long day of shopping. Many of our doctors practice in Bend, an hour from home, so when we have an appointment there, it always includes Costco and 3 or 4 thrift stores and a restaurant or 2. Said all that to say that my feet are really burning and painful above my ankles. I put lidocaine cream on my feet, but I'm not sure it's going to help much. When the pain shoots past 10, it's time to turn my focus away from the pain. One way I deal with the pain is to focus on the feelings in my feet aside from the pain. I observe the tingling, which is way better than the pain. It's always interesting when I do that, what amazing power my brain has. We're created with unimaginable abilities, much of which we never access, but it's there whether or not we use it. Skin, our largest organ, has a natural ability to heal. Our eyes are essentially a small part of our brain and it exposes the brain to the environment. And the incredibly complex system of nerves - that's what we talk about a lot here - sometimes we can control them, sometimes they send us to our knees in tears and prayers.

The year I turned 50, my body started its decline. I was finally diagnosed with sleep apnea and started using a CPAP machine. That was a huge deal. Then my gall bladder function dropped to 14% and was removed. I started taking my first antidepressant. 40" of my small intestine stopped working and had to be removed. Then came bleeding ulcers. Then a mega toxic colon, had 80% of large intestine removed. Through all of that, depression and suicidal ideation and anxiety disorder and PTSD were having a heyday. I had to retire at age 55 on SS disability because I couldn't function any longer with the mental illness.

All of this is part of what I have to relive every time I have a new therapist. The first few sessions are telling my story. Telling and retelling the history of abuse and rejection and wanting to die dredges up the hurt of old wounds. So, every once in a while I take a leave of absence from Connect, while I make my way through the gunk. I'm thankful for the patience and understanding that the leaders of this group give me.

I can't help myself. I frequently get started writing and before I know it I've written way more than I intend.

Jim

Jump to this post

There is something wrong with you. Sorry for you.

Jump to this post

Yes Jim, I found myself doing that too. I am a very private person, but I have unloaded here much more than I ever intended to do. My present husband doesn’t know what you all know about me here.

Jump to this post

Yes Jim, I found myself doing that too. I am a very private person, but I have unloaded here much more than I ever intended to do. My present husband doesn’t know what you all know about me here.

Jump to this post