Dialated Cardiomyopathy with decreased EF rate

Posted by camaroyo @camaroyo, Jan 20, 2019

I had mitrol valve replacement in 2014. I was recently diagnosed with dialated cardiomyopathy. I’m getting a muga scan end of Jan 2019 to get a better read on my EF rate cause it’s right on the cusp of heart failure. I’m trying to find more info on this diagnosis. Supposedly, life span has increased from 2 to 5 years to possibly 7 or more years. I have a pacemaker but expect to get a defibrillator put in to help avoid possible sudden death. The muga scan will determine my need for this. Any one have any current information on this diagnosis.

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Hi @camaroyo, I moved your message to the Heart & Blood Health group to connect you with others who have similar issues with mitral valve replacement, ejection fraction and dialated cardiomyopathy, like @jillybeans22 @tiredofbeingsick @predictable @hopeful33250 and @murryone.

Did you see this video with Dr Timimi about heart failure with preserved ejection fraction? https://connect.mayoclinic.org/discussion/confused-about-stiff-heart-diastolic-heart-failure-or-hfpef/

Camaroyo, what is your EF rate?

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@colleenyoung

Hi @camaroyo, I moved your message to the Heart & Blood Health group to connect you with others who have similar issues with mitral valve replacement, ejection fraction and dialated cardiomyopathy, like @jillybeans22 @tiredofbeingsick @predictable @hopeful33250 and @murryone.

Did you see this video with Dr Timimi about heart failure with preserved ejection fraction? https://connect.mayoclinic.org/discussion/confused-about-stiff-heart-diastolic-heart-failure-or-hfpef/

Camaroyo, what is your EF rate?

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Appears to be 35%. Muga scan should help define that

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@camaroyo

Appears to be 35%. Muga scan should help define that

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With an EF rate of 35% I can understand your concern, @camaroyo. For those on Connect who might not be familiar with a MUGA Scan, here is some information about this procedure, https://www.mayoclinic.org/departments-centers/overview/ovc-20442550.

When will you be having the MUGA scan?

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@hopeful33250

With an EF rate of 35% I can understand your concern, @camaroyo. For those on Connect who might not be familiar with a MUGA Scan, here is some information about this procedure, https://www.mayoclinic.org/departments-centers/overview/ovc-20442550.

When will you be having the MUGA scan?

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Great. I was wondering.bive never heard of that. I have a defibrillator, heart failure. I've had nuclear testing and r heart Cath. Good info

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@suscros68 How was your heart catheterization? For me that's where they found my blockages in my heart arteries that led to my by pass

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@lioness

@suscros68 How was your heart catheterization? For me that's where they found my blockages in my heart arteries that led to my by pass

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I've had several of them now.vthey check for how my heart failure is doing . The procedure is always scary for me. They don't put me to sleep just stick a giant needle in neck and guide wire to heart. Doctors make it sound like it's no big deal. Bet they've never had one.

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@suscros68

I've had several of them now.vthey check for how my heart failure is doing . The procedure is always scary for me. They don't put me to sleep just stick a giant needle in neck and guide wire to heart. Doctors make it sound like it's no big deal. Bet they've never had one.

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@suscros68 Mine was in my groin they threaded it up into my heart since I'm retired nurse I watched it on the monitor ,did you?

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No because it was in neck and had my head draped .

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@suscros68

No because it was in neck and had my head draped .

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@suscros68 Oh sorry it was so interesting lol

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@hopeful33250

With an EF rate of 35% I can understand your concern, @camaroyo. For those on Connect who might not be familiar with a MUGA Scan, here is some information about this procedure, https://www.mayoclinic.org/departments-centers/overview/ovc-20442550.

When will you be having the MUGA scan?

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30 Jan is my Muga scan. Anxious to see what it shows, but I am expecting a defibrillator to b needed w/ my pacemaker. Praying that works if needed because the next step is very scary.

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