Fibromyalgia pain: Let's connect

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

@rachel6

Exactly! Every symptom is heightened because there’s so many layers of symptoms going on at once. ReSEARCHing is good. I’ve learned so much from people in these groups which have led me to get properly diagnosed for some issues. Keep us posted on how things go. You sound smart & sweet.

Jump to this post

.....rachel6 ... you explained it all much bettr in one sentence... I tend to ramble. Yes will let you know , also hope to hear from lioness how she makes out: take care all J.

REPLY
@lacy2

.....rachel6 ... you explained it all much bettr in one sentence... I tend to ramble. Yes will let you know , also hope to hear from lioness how she makes out: take care all J.

Jump to this post

@lacy2 I received a note from Nick of the taping solution He gave me this for you Since I go tomorrow I will use it too.Nick said just change the words to go with your concerns.Here it is https:// wwwthetappingsolutipns.com/ eft articles/ afraid-of-the-dentist-how-eft-can-soothe-your-root-canal-blues/ let me know if it helps Linda

REPLY
@lioness

@lacy2 I received a note from Nick of the taping solution He gave me this for you Since I go tomorrow I will use it too.Nick said just change the words to go with your concerns.Here it is https:// wwwthetappingsolutipns.com/ eft articles/ afraid-of-the-dentist-how-eft-can-soothe-your-root-canal-blues/ let me know if it helps Linda

Jump to this post

@lioness Thank you so much. Had a very bad day today with the crying spells on top of it all... had a bad spell of the internal shaking and am getting a bit confused... I make notes and type out a short calendar/diary and print off, just for ease of recalling dates and appointments and had mixed up quite a few, am scared. Will look at the website tonight and hope it might cover not only the scary dental visits but I "think" I may have had reaction to the numbing agents - lidocaine/epinephrine/and another but last needle was end of December.. surely IF I had reaction would it have a lasting affect. Am very anxious but trying to cover it up, but husband still only 4 months after bypass surgery and has other issues and I feel I am a drain on him.... I can make jokes over emails etc. but that's giving a false impression of what I have been and am going through and darn it, last November I seemed to be making progress ..... its an impossible dream: wish I could wrap my arms around myself and include everyone suffering with illness and medical issues and make us all better..... J. Pity Party In Full Swing P.S. JUST A TYPO IN SOLUTIONS WORD, BUT JUST CORRECTED IT, THANKS X

REPLY

@lacy2 I'm so sorry your having a bad day I have fibro flares and it's the pits I can't do anything and nothing helps You just want to stay in bed I know I do . Tomorrow is another day and it will be a better day I pray . Do you have other problems that are hurting you today ? Just know your not alone there are alot on here that are suffering also.Wouldnt that be nice if we had a wand to wish the pain to go away. I'm going to use the website for tomorrow I'm pretty sure he will pull some teeth But I,ll be glad to get them pulled causing me a lot of trouble Think positive Praying for you Good luck
.

REPLY
@lioness

@lacy2 I'm so sorry your having a bad day I have fibro flares and it's the pits I can't do anything and nothing helps You just want to stay in bed I know I do . Tomorrow is another day and it will be a better day I pray . Do you have other problems that are hurting you today ? Just know your not alone there are alot on here that are suffering also.Wouldnt that be nice if we had a wand to wish the pain to go away. I'm going to use the website for tomorrow I'm pretty sure he will pull some teeth But I,ll be glad to get them pulled causing me a lot of trouble Think positive Praying for you Good luck
.

Jump to this post

..thanks and good luck tomorrow... I just offered a tiny bit of help to someone who also dealing with a lot... yes i have fecal incontinence and pain and pressure in colon thats new last few months; tinnitus and ear pain for a long time and year wait to check it out but I know nothing can be done...and like others since i had cdiff yeas ago never really got over it fatigue and can barely put a sandwich together; also this stupid crying which makes matters worse... and it goes on and on. Physical and mental pain .. its when it all comes at once I want to give up... from when I wake up in morning I cant wait until i can turn off the light at night and sleep and escape. I will try the tapping tho.... thanks again. I am interested in what numbing agent your dentist uses tomorrow if you want to share. J.

REPLY

Lacy, Lioness & all,
Not sure I’m replying in the right spot but I have a suggestion/idea...Lacy think about having someone who can help you with your calendar/schedule like another family member (other than your recovering husband) friend or professional? Sounds like you have a system which is good but having another person or advocate to help will take pressure off you (maybe local health advocate).
Internal tremors I wish we both could figure out. Keep asking every doctor/nurse you communicate with in hopes one will be of help. Stressful times or heightened stress can also bring about lots of symptoms. I’m so sorry your day was so hard. The weather is warming up here in the Midwest and it sent my CRPS into high pain mode today (always a huge issue but warmer weather or rain puts me over the edge). And that’s only 1 of the many many health issues but we all deal with so much.
Keep us informed & hugs to you both & to everyone in pain.

REPLY
@rachel6

Lacy, Lioness & all,
Not sure I’m replying in the right spot but I have a suggestion/idea...Lacy think about having someone who can help you with your calendar/schedule like another family member (other than your recovering husband) friend or professional? Sounds like you have a system which is good but having another person or advocate to help will take pressure off you (maybe local health advocate).
Internal tremors I wish we both could figure out. Keep asking every doctor/nurse you communicate with in hopes one will be of help. Stressful times or heightened stress can also bring about lots of symptoms. I’m so sorry your day was so hard. The weather is warming up here in the Midwest and it sent my CRPS into high pain mode today (always a huge issue but warmer weather or rain puts me over the edge). And that’s only 1 of the many many health issues but we all deal with so much.
Keep us informed & hugs to you both & to everyone in pain.

Jump to this post

rachel6 thank you yes its been a long haul for me as well and overwhelming now at 77 i may have said before and sure dont like to leave my family but i am not as scared of dying but of suffering and being out of control and making my decisions and not having someone make them for me is important to me... it may sound selfish but I have a limit to my pain and other issues...and while I honestly and wholeheartedly understand there are many with heavier burdens than mine, I cant spend another summer as the past 3 in my room mostly although i am able to go to dr appointments etc., as I think I started a chat site: Is it Depression or Demoralization and for me its the latter and I can see no light at the end of the tunnel and I just wish has the inner strength of many others who fight through all this.... I just dont have the strength any more and if it were not for the odd hour here and there of some almost normal feelings, well......

REPLY

@rachel6 Thanks you too we are all pain warriors on here just keep looking up for a brighter tomorrow

REPLY
@lacy2

..thanks and good luck tomorrow... I just offered a tiny bit of help to someone who also dealing with a lot... yes i have fecal incontinence and pain and pressure in colon thats new last few months; tinnitus and ear pain for a long time and year wait to check it out but I know nothing can be done...and like others since i had cdiff yeas ago never really got over it fatigue and can barely put a sandwich together; also this stupid crying which makes matters worse... and it goes on and on. Physical and mental pain .. its when it all comes at once I want to give up... from when I wake up in morning I cant wait until i can turn off the light at night and sleep and escape. I will try the tapping tho.... thanks again. I am interested in what numbing agent your dentist uses tomorrow if you want to share. J.

Jump to this post

@lacy2I,ll let you know

REPLY
@lacy2

rachel6 thank you yes its been a long haul for me as well and overwhelming now at 77 i may have said before and sure dont like to leave my family but i am not as scared of dying but of suffering and being out of control and making my decisions and not having someone make them for me is important to me... it may sound selfish but I have a limit to my pain and other issues...and while I honestly and wholeheartedly understand there are many with heavier burdens than mine, I cant spend another summer as the past 3 in my room mostly although i am able to go to dr appointments etc., as I think I started a chat site: Is it Depression or Demoralization and for me its the latter and I can see no light at the end of the tunnel and I just wish has the inner strength of many others who fight through all this.... I just dont have the strength any more and if it were not for the odd hour here and there of some almost normal feelings, well......

Jump to this post

It’s understandable what you’re saying. Remind yourself about those almost normal feelings of relief and relish in them when they occur. Big soft hugs again.

REPLY
Please sign in or register to post a reply.