Fibromyalgia pain: Let's connect

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

My doctor swears Cymbalta works for fibro pain better than anything else. I take 90mg a day, also 600mg Lyrica, and many other meds.
Personally, I believe that acupuncture and massages are awesome for fibromyalgia.
It is also nice to communicate with others that have same issues. Loneliness sucks and definitely causes depression,
fresh air seems to always make me feel better.

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@wishingtobepain

My doctor swears Cymbalta works for fibro pain better than anything else. I take 90mg a day, also 600mg Lyrica, and many other meds.
Personally, I believe that acupuncture and massages are awesome for fibromyalgia.
It is also nice to communicate with others that have same issues. Loneliness sucks and definitely causes depression,
fresh air seems to always make me feel better.

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Hi!
I tried both and neither worked for me.
Here is what worked for me:
Amitriptyline (spelling?) very low dosage to get me into deep, healing sleep..
Exercise-I started walking with my hubby basically pulling me the entire way. Eventually I did it myself and added weight exercises, too.
Theraputic massage
Chiropractor
Aquatic PT
Losing Weight
Everyone is different and reacts differently to everything.
Have a good day!
Ronnie

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I had a spinal compression fracture about 3-4 yrs. ago. After that healed, the spine specialist could not figure out why I still had pain, so he finally decided to test my D3 level which turned out to be low. I now take 4,000 mg daily to correct this. Also, he believes I have fibromyalgia and prescribed Lyrica. Lyrica was very expensive, but there is now a generic for it called pregabalin which is about $50 per month. It helps with some of the pain and lets me sleep better. I also use CBD ointment which comes in a small jar. The full name of it is CBD Plus oil help balm - label is black and gold colored - I buy at CVS for $25. The odor is mild enough that I can wear it when I go someplace. I have my husband put it on my back every night at bedtime and then use a heating pad. Hope some of these ideas help.

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@sandytoes14

You can make your own heating pad! If you are a non sewer like I am you can take a sock fill it with rice and tie it up. Heat it in the microwave for 30 seconds at a time till its warm but not too hot. I have one made from dried corn that I put a few drops of lavender oil on.

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Those are great! I was given 2 as a present last Christmas. One large and one small. They were sewn from pretty fabrics. I suppose one could use pretty socks. They worked just as well as a heating pad. I used a heating pad on LOW and it blistered my back so I bought a microwave one and it’s much better.

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I have found large daily doses of Tumeric to be very, very helpful in reducing the inflammation. I understand ginger also helps. But so far, the tumeric is perfect for me. Read about it and see what you think. Allow a few days for it to start its effectiveness. Good luck.

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@clownscrytoo

@2122
I'm very intrigued by this. I have never heard of night shade family foods. I will look for it online for sure. thank you and I hope you have a great day!
Clownscrytoo 🙂

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tomatoes and peppers. I tried staying of them which is difficult if you love Italian food which is ll tomato based. It didn't make any difference for me neither did staying off dairy

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@mxdebbie

I have found large daily doses of Tumeric to be very, very helpful in reducing the inflammation. I understand ginger also helps. But so far, the tumeric is perfect for me. Read about it and see what you think. Allow a few days for it to start its effectiveness. Good luck.

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Hi
My name is Sue, living in illinois.
Think about going to pain clinic that can deal with your issues in a well rounded way. I have over seven spinal compression fractures, a pelvic fracture, need two knee replacements on top of both shoulders muscles tearing off. Currently 57 and wheelchair bound.
I take multiple medications including muscle relaxers and lidocaine patches over bad areas.
The pain clinic I use encourages diet, exercise, regular and water therapy. They use medications and blocks when appropriate. I like coming up with an individual plan to manage pain and depression and the “bad” days.
I do believe supplements can be very helpful too. My vitamin d was low and corrected but didn’t help pain. Turmeric was too hard on my stomach. Currently trying cbd with ash Wanda shows promise along with amino acids for shoulders.
Dealing with chronic pain is very difficult. The moments you get relief make you feel like normal is possible again. Keep working on your personal plan to be able to achieve your personal best.

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@mxdebbie

I have found large daily doses of Tumeric to be very, very helpful in reducing the inflammation. I understand ginger also helps. But so far, the tumeric is perfect for me. Read about it and see what you think. Allow a few days for it to start its effectiveness. Good luck.

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Can you tell us what “large doses of turmeric” means? Are you taking it in spice form or in pill form and how much? I tried the tea for a few days and it appeared to help but I thought it was just my wishful thinking. I’d love to know what dose you take.

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@whattodo

Can you tell us what “large doses of turmeric” means? Are you taking it in spice form or in pill form and how much? I tried the tea for a few days and it appeared to help but I thought it was just my wishful thinking. I’d love to know what dose you take.

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Please check with your doctor before taking tumeric as it's a blood thinner.

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I too, suffer from chronic pain.. Wish the opiods were still available. I use to take like 1 tablet once a week just slow down the pain and then be able to suffer with the pain the rest of the week. I am now using a walker to get around. Thanks for listening.

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