Organ pain from auto immune?

Posted by nanke99 @nanke99, Oct 9, 2016

Ok so I've been having upper right quadrant abdomen pain for 1 1/2 years now! I've had a sonogram, an upper GI series and a HIDA scan with contrast- showed nothing. It is definitely in the liver/kidney area, and clearly feels like kidney pain (back) often. My blood work is otherwise normal, excepting the SED and CRP's which have gone down slightly since i have been medicated.
So can Fibro cause organ pain???? Inflammation? My Rheum doesn't seem to think so but I have seen that online. My Gastro doc isn't sure either.
Anyone heard of such a thing?

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That is a difficult question for the community to answer Nanke. I'm tagging fellow Connect members @vickiekay @blindeyepug @leslon @undiagnosed_pain @mom2zacknwill @clubohara and @suzz. Have any of you experienced abdominal pain in the liver/kidney area associated with fibromyalgia?

Nanke, what makes you think it might be due to fibro-related inflammation?

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thanks! Well, considering nothing has been showing up in the various tests that I've had, it seems a like a possibility....?
I have seen organ inflammation listed on many website as a result of auto immune diseases.
Is this not true?

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I also have been having pain in that area. Not sure where it is coming from. I have been having a lot of ear infections and uti's. My GI says that fibrosis can cause the pain. Any information out there would help us both.

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I had upper quadrant pain for the last 9 months. Dc'd Celebrex, took Prilosec and Pepcid, added probiotic, etc. PC doctor said IBS, but symptoms didn't fit. Finally sent me to a surgeon for an upper endoscopy. Surgeon said that he wanted a colonoscopy, too. Clean so he ordered an upper GI and pelvic CT. Insurance wouldn't pay for the pelvic CT, so he ordered an ultrasound. Surprise, I had large cysts in each ovary, which were not there a year ago by palpitation. Surgically removed two weeks ago, I am now stomachache free. Who would have thought!

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@mollyb1968, @kreed13
thank you for your responses! i am due to have a pelvic CT also, so if anything comes of that i will let you know. oddly, at my most recent obgyn visit, with a new doc, she did not do much palpitation at all.. i was wondering if this is a new trend with younger doctors? we'll see... i am still interested in hearing from others. thanks!

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I just had an ammonia level done and it was slightly elevated. I also just had a uti and the nurse told me I had high protein and nitrates in my urine. Would that cause my ammonia level to be slightly elevated.

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I've had traces of protein in my urine for years and the doctors don't know why. They've supposedly checked everything and still can't explain it. I consistently have protein in my urine any time I have a urinalysis.

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Have you been checked for Sjogren's? It can cause stomach pain. I have RA, Sjogren's and Fibro. They usually come in pairs or groups.

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Blindeyepug- If I could ask you a question about your pain, I was diagnosed with Agent Orange Chemicals in my body and my immune system- is your pain all over or is it one place, I know my stomach has not been the same since I was diagnosed, I can't taste anything -or can I eat more than a few bites.- my tongue burns and my tissue inside my mouth hurts when I eat, I know that sounds crazy- but its the truth and the Agent Orange Doctor here at the VA that gave me a very exam, told me my mouth would be that way for now on and there was nothing they could do- also the Immune system will be weaken' and I will be really open to pneumonia( I have been in the hospital since then with double pneumonia -for a week) came home and had a relape three days later and again 4 weeks later- that just a couple issues. Thanks for your time. JJames

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Hi johnjames. I get blisters in my mouth on and off, but was told it is from my Sjogren's. (I had a lip biopsy to positively diagnose the same.) I have specific areas of pain in my stomach, especially to the lower right of my belly button. Even if I press on it, it hurts. Have been told it is my Sjogren's. I have sluggish bowel due to the Sjogren's. I am on medication for all my chronic conditions, but still have flares. So, so sorry to hear of your condition and also having double pneumonia episodes! Having chronic conditions is a pain in the you-know-what. I find swimming and/or walking - trying to keep moving - helps some with my problems. I know if I am still too many days in a row, everything just gets worse and worse. It is a long climb back from the slide downward. I promised myself I would never get to that point again. So far, so good for years now. I have not been as bad as I was in the very beginning. I also try to stay positive. I will keep you in my prayers, John. I hope this is of help to you.

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