Starting all over

I was in a car accident when I was 26 yrs old. Sustained numerous injuries. One was a head concussion that went undetected ended up with post-concussion syndrome and multiple seizures. I have was put on multiple different drugs including Tegretol, phenobarbital, Depakote Dilantin, Neurontin, Keppra horrible side effects. The local pain clinic gave me 12-22 nerve block injections every week without fail for 1year. I asked to take a break because I can no longer explain the pain because it hurts from injecting the same spot every week. Doctor just discharged me saying it was "my negative attitude they not working". Finally referred to Mayo clinic many years later. Admitted to seizure lab for 10 days, put on Trileptal and have been seizure free since & no migraines. So thankful for all my mayo doctors.

Jump to this post

Yes and no. All of my life I've gone through stages of epilepsy from Grand Mal to present Partial Complex, not to mention at least 2 migraines a week since the age of 13. Always being told no, or try this. When I began to take things into my own hands and lived in California at the time; I studied these things at Stanford Universities doctors library and learned a lot. Obviously with age, our entire system slows down in its operation and organ functions. There item one= medications have ability to stay in your system longer and create higher toxicity levels with less dosages. A CBC is most helpful in this sense, so as to see what blood deficiencies you may have as well as what supplements can help your medicine function more efficiently. Then of course, with the differentiation of our systems, some medications can only work for specified periods of time before raising them increases toxicity and over dosage. Example, in my case; "doctors had to change my medication at 6 year intervals, so as to avoid over dosage. Starting out with Dilantin and Phenolbarbital and moving to Dilantin and Mebaral, then Mesantoin, Trileptal, Carbamazapine, Tegretol, L?, tehen Keppra, Primidone, Mysoline and back to Carbamazapine eliminating Primidone entirely. Personally, I feel a lot has to do with ones body system and operation. In other words as we mature in understanding triggers and causes, thereby removing them from our life when possible; anxiety, stress, depression, etc. may not need as much medication to control the stability of our brain waves. Presently, at 77+ years, no seizures for up to 3 years, no migraines over 4 years; only bone pain from cancer and no fear since being put in Hospice a month ago.

irvkay312

Jump to this post

@lisa54 A my doctors are at Rochester. I have just had a stumbling block. I know they will figure it out for some reason, bad luck, the end up writing an addendum to the text books. lol
I pray your health improves Despite All Odds.

Jump to this post

Yes and no. All of my life I've gone through stages of epilepsy from Grand Mal to present Partial Complex, not to mention at least 2 migraines a week since the age of 13. Always being told no, or try this. When I began to take things into my own hands and lived in California at the time; I studied these things at Stanford Universities doctors library and learned a lot. Obviously with age, our entire system slows down in its operation and organ functions. There item one= medications have ability to stay in your system longer and create higher toxicity levels with less dosages. A CBC is most helpful in this sense, so as to see what blood deficiencies you may have as well as what supplements can help your medicine function more efficiently. Then of course, with the differentiation of our systems, some medications can only work for specified periods of time before raising them increases toxicity and over dosage. Example, in my case; "doctors had to change my medication at 6 year intervals, so as to avoid over dosage. Starting out with Dilantin and Phenolbarbital and moving to Dilantin and Mebaral, then Mesantoin, Trileptal, Carbamazapine, Tegretol, L?, tehen Keppra, Primidone, Mysoline and back to Carbamazapine eliminating Primidone entirely. Personally, I feel a lot has to do with ones body system and operation. In other words as we mature in understanding triggers and causes, thereby removing them from our life when possible; anxiety, stress, depression, etc. may not need as much medication to control the stability of our brain waves. Presently, at 77+ years, no seizures for up to 3 years, no migraines over 4 years; only bone pain from cancer and no fear since being put in Hospice a month ago.

irvkay312

Jump to this post

That's the most important thing I learned as a member of the Employer Committee of The President's Committee on Employment of People with Disabilities one year after the A.D.A. was signed into law. We taught large and small companies, as well as people what could and couldn't be done or said relative to a disabled persons rights. I met with numerous disabled people each year at the national convention "to learn the problems they faced with their disability and those of us who got over the hump learned from others." Minnesota's State Disability Council and Minneapolis Disability Councils that I was on during that period of time also added to my understanding.

irvkay312

Jump to this post

A lot...tired of all the different doctors and medications too. I did stop seeing the doctors in my area and went to Rochester, Mayo. They were the best. Answered all my questions and talked to me on a level I could understand what the ???? is wrong with me. I learned my condition there is no cure but at least I know it's up to me about my treatment and time line.

Jump to this post

That's the most important thing I learned as a member of the Employer Committee of The President's Committee on Employment of People with Disabilities one year after the A.D.A. was signed into law. We taught large and small companies, as well as people what could and couldn't be done or said relative to a disabled persons rights. I met with numerous disabled people each year at the national convention "to learn the problems they faced with their disability and those of us who got over the hump learned from others." Minnesota's State Disability Council and Minneapolis Disability Councils that I was on during that period of time also added to my understanding.

irvkay312

Jump to this post