Cardiomyopathy

Posted by bibi12 @bibi12, May 27, 2016

Has there been any discussions on severe cardiomyopathy

Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.

@colleenyoung

@bibi12 have you been diagnosed with dilated cardiomyopathy?

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Possibly. I'm listed as nonischemic cardiomyopathy<br><br>Vivian Rivera Drohan<br><br>

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Hi, are there any members in this discussion who may speak Spanish and would be willing to connect with @guadalupe regarding hypertrophic cardiomyopathy?

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I speak a little Spanish. I can try to help her out.

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Google translate is a great help!

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@cynaburst

I speak a little Spanish. I can try to help her out.

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Perfect @cynaburst! I will connect you to her. Thank you!

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@colleenyoung

Welcome @bibi12,
There are several discussions in the Heart group about cardiomyopathy and HOCM. See these
https://connect.mayoclinic.org/discussion/hello-i-was-diagnosed-with-hocm-last-year-i-have-been-told/
https://connect.mayoclinic.org/discussion/hello-i-had-surgery-at-mayo-in-2014-a-cardiac-septal-myectomy/
https://connect.mayoclinic.org/discussion/what-is-cardiomyopathy-can-you-explain-systolic-cardiomyopathy-how-about-diastolic-cardiomyopathy/

But I welcome this new thread specific to severe cardiomyopathy. Let me introduce you to the gang. Please meet
@cynaburst @lynnkay1956 @PatMattos @Sensation @ronaldpetrovich @rmcmillan @lepadelford @catiemorris @wandikarnadi @barbararickard @FrancineFafard @lisa7 @lucindag

Bibi, why don't you start off the conversation and tell us a bit more about yourself? How long have you had HCM? Have you had a myectomy? How are you managing today?

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Hello, I have HCM at 60 I had a myectomy 7 years ago after 6 years of doctors not knowing what was wrong with me. I could not walk very far without getting out of breath, finialy I found a Doctor that referred me to a doctor at Loma Linda Univ Redlands, Ca The best doctors. I'm able to walk fast and do not get tired. A Blessing !

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@colleenyoung

Welcome @bibi12,
There are several discussions in the Heart group about cardiomyopathy and HOCM. See these
https://connect.mayoclinic.org/discussion/hello-i-was-diagnosed-with-hocm-last-year-i-have-been-told/
https://connect.mayoclinic.org/discussion/hello-i-had-surgery-at-mayo-in-2014-a-cardiac-septal-myectomy/
https://connect.mayoclinic.org/discussion/what-is-cardiomyopathy-can-you-explain-systolic-cardiomyopathy-how-about-diastolic-cardiomyopathy/

But I welcome this new thread specific to severe cardiomyopathy. Let me introduce you to the gang. Please meet
@cynaburst @lynnkay1956 @PatMattos @Sensation @ronaldpetrovich @rmcmillan @lepadelford @catiemorris @wandikarnadi @barbararickard @FrancineFafard @lisa7 @lucindag

Bibi, why don't you start off the conversation and tell us a bit more about yourself? How long have you had HCM? Have you had a myectomy? How are you managing today?

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Welcome to Connect @woodywood. I'm glad you joined our group. I think you might also be interested in our upcoming webinar:
Nov 2 - "Hypertrophic Cardiomyopathy and the Surgical Treatment Apical Myectomy" with Mayo Clinic cardiac experts Drs Schaff and Ommen You can sign up to take part here: http://mayocl.in/2dmWhdI

You might also be interested in meeting fellow HCM-ers in these discussions:
- Amiodarone for HCM http://mayocl.in/2dgLzqH
- Diagnosed with HOCM last year. May be time for surgery http://mayocl.in/2ef1nMc
- Not able to overcome my anxiety and FEAR related to my HCM http://mayocl.in/2ef3aRh

Woody, can you tell us a bit more about your recovery period? What activities did you include in your rehab? How long did it take to get back to walking like you can today?

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@colleenyoung

Welcome @bibi12,
There are several discussions in the Heart group about cardiomyopathy and HOCM. See these
https://connect.mayoclinic.org/discussion/hello-i-was-diagnosed-with-hocm-last-year-i-have-been-told/
https://connect.mayoclinic.org/discussion/hello-i-had-surgery-at-mayo-in-2014-a-cardiac-septal-myectomy/
https://connect.mayoclinic.org/discussion/what-is-cardiomyopathy-can-you-explain-systolic-cardiomyopathy-how-about-diastolic-cardiomyopathy/

But I welcome this new thread specific to severe cardiomyopathy. Let me introduce you to the gang. Please meet
@cynaburst @lynnkay1956 @PatMattos @Sensation @ronaldpetrovich @rmcmillan @lepadelford @catiemorris @wandikarnadi @barbararickard @FrancineFafard @lisa7 @lucindag

Bibi, why don't you start off the conversation and tell us a bit more about yourself? How long have you had HCM? Have you had a myectomy? How are you managing today?

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@woodywood Congratulations on your recovery. I'm glad to hear that your are doing so much better. Please share, if you can, what was included in your recovery program. Was it meds or cardiac therapy? Best wishes!

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@colleenyoung

Welcome @bibi12,
There are several discussions in the Heart group about cardiomyopathy and HOCM. See these
https://connect.mayoclinic.org/discussion/hello-i-was-diagnosed-with-hocm-last-year-i-have-been-told/
https://connect.mayoclinic.org/discussion/hello-i-had-surgery-at-mayo-in-2014-a-cardiac-septal-myectomy/
https://connect.mayoclinic.org/discussion/what-is-cardiomyopathy-can-you-explain-systolic-cardiomyopathy-how-about-diastolic-cardiomyopathy/

But I welcome this new thread specific to severe cardiomyopathy. Let me introduce you to the gang. Please meet
@cynaburst @lynnkay1956 @PatMattos @Sensation @ronaldpetrovich @rmcmillan @lepadelford @catiemorris @wandikarnadi @barbararickard @FrancineFafard @lisa7 @lucindag

Bibi, why don't you start off the conversation and tell us a bit more about yourself? How long have you had HCM? Have you had a myectomy? How are you managing today?

Jump to this post

My recovery was fast, I was in the hospital for 4 day. It was a challenge the first few weeks post op. I made sure I was up every morning to shower and dress to go for a short walk. I did this everyday because it felt good to get out of bed. I was given Norco for pain for the 1st month, within 6 Weeks I was riding the trails on my dirt Bike.

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