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Margaret_Marie

21 hours ago by @Margaret_Marie in About Kids & Teens · View  

#AsktheMayoMom about Common Pediatric Questions

Join us on March 2 at 10 am CT for an #AsktheMayoMom Facebook Live session with Dr. Angela Mattke, pediatrician, and Dr. Esther Krych, pediatrician, about common pediatric questions.

Learn more about:

  • Growth
  • Development
  • Other general pediatric questions

Dr. Mattke and Dr. Krych will answer questions live during the broadcast. Post your questions below before and during the broadcast. Sign up for event notifications.

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Margaret_Marie

Tue, Feb 7 at 10:27am CST by @Margaret_Marie in Heart & Blood Health · View  

#AsktheMayoMom about Congenital Heart Disease

February 23, Dr. Angela Mattke and Dr. Johnathan Johnson talk about:

 

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suzannerferguson

Wed, Feb 1 at 8:35am CST by @suzannerferguson in HLHS · View  

#AsktheMayoMom Facebook Live Tomorrow at 10 am CT

Join us tomorrow at 10 am CT for an #AsktheMayoMom Facebook Live session about hypoplastic left heart syndrome (HLHS) with Dr. Angela Mattke, pediatrician, and Dr. Timothy Nelson, pediatric cardiologist and director of the Todd and Karen Wanek Family Program for HLHS.

http://mayocl.in/2jVbQu0

image-ba0401a82a02

 


The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is a collaborative network of specialists bonded by the vision of delaying or preventing heart failure for individuals affected by congenital heart defects including HLHS. The specialized team is addressing the various aspects of these defects by using research and clinical strategies ranging from basic science to diagnostic imaging to regenerative therapies. Contact the program at HLHS@mayo.edu.

 

 

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Margaret_Marie

Mon, Jan 23 at 9:43am CST by @Margaret_Marie in Heart & Blood Health · View  

#AsktheMayoMom about Hypoplastic Left Heart Syndrome (HLHS)

Dr. Angela Mattke, pediatrician, and Dr. Timothy Nelson, pediatric cardiologist and director of the Todd and Karen Wanek Family Program for HLHS, discuss hypoplastic left heart syndrome (HLHS).

Learn more about:

Dr. Mattke and Dr. Nelson answer questions live during the broadcast. Stay up-to-date with the latest information about HLHS by reading the HLHS Cause to Cure blog.

 

 

mschl801

mschl801 responded Thu, Feb 2 at 10:03am CST · View

Are stem cells projected to be used just on newborns or are there other treatments for older children/young adults who have HLHS? I have heard of older children with HLHS who battle JRA, weakened immune systems, liver enlargement, and skin ailments (warts and molluscum). Do you have any research that could help clarify these other long term "side effects" of cardiac conditions?

colleenyoung

Colleen Young, Connect Director responded Thu, Feb 2 at 10:33am CST · View

Thank you for joining us for the live Video Q&A with Dr. Mattke and Dr. Nelson. For anyone who missed the live event or if you want to watch it again, the video is archived at the top of this page.

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Margaret_Marie

Tue, Jan 10 at 10:40am CST by @Margaret_Marie in About Kids & Teens · View  

#AsktheMayoMom about Pediatric Sports Medicine and Scoliosis

#AsktheMayoMom Facebook Live session with Dr. Angela Mattke and Dr. Todd Milbrandt, pediatric orthopaedic surgeon, about scoliosis and pediatric sports medicine.

Topics include:

  • Sports with high risk of injuries
  • Most common injuries
  • What is scoliosis
  • Best treatment for scoliosis

 

atrex

atrex responded Sat, Feb 4 at 5:58pm CST · View

Need help finding a VBT surgeon in Florida

jamienolson

Jamie Olson, Connect Moderator responded Sun, Feb 5 at 12:01pm CST · View

Hello @atrex! Welcome to Mayo Clinic Connect. Thank you for posting your question here. There is a Mayo Clinic in Jacksonville. http://www.mayoclinic.org/appointments -Here is the contact information for our appointment line. A patient appointment coordinator will assist you in finding an appointment time to meet with a surgeon . You may also find this Mayo Clinic Q and A about scoliosis helpful. http://mayocl.in/2kHqB6T Is this appointment for yourself? or for a family member?

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Margaret_Marie

Dec 27, 2016 by @Margaret_Marie in About Kids & Teens · View  

#AsktheMayoMom about Maternal Fetal Medicine Surgery

Dr. Angela Mattke and Dr. Rodrigo Ruano discuss maternal fetal medicine surgery during an #AsktheMayoMom Facebook Live session on January 5.

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kanaazpereira

Hi @jruza,

A while ago, you had a question about your son who has SCN1A mutation with GEFMS+ and would someone with intractable epilepsy be a good candidate for surgery.

We brought your question to #AsktheMayoMom about Pediatric Epilepsy Surgery, a video discussion with Dr. Angela Mattke and Dr. Nick Wetjen from Mayo Clinic.

Here is their video response:

http://mayocl.in/2hd4uEg

Jen, how is your son doing?

kanaazpereira

Hello @hermsenk,

We also brought your question about your son to #AsktheMayoMom about Pediatric Epilepsy Surgery, a video discussion with Dr. Angela Mattke and Dr. Nick Wetjen from Mayo Clinic.

Here is their video response:

http://mayocl.in/2hd4uEg

I sincerely hope this helps.

colleenyoung

Hi @blath2000 @ketomom @hermsenk @punkin312 @inkdfrog @sarahv @erinorb @kelly8573 @andrearmay @fritacca @jruza @sbruce @mikearons50 @grandma @krd94

We're hosting another #AskTheMayoMom about pediatric epilepsy on Dec 15 at 10am CT. During this video Q&A Dr. Angela Mattke and guest Dr. Nick Wetjen, pediatric neurologist, will talk about pediatric epilepsy. You can participate by asking questions; Click View & Reply to see the details.

You do not need a Facebook account to be able to watch the broadcast. You can watch it right here on this page on Connect.
Please post your questions before the event, so we can give them to Drs Mattke and Wetjen beforehand. You can also ask questions during the broadcast.

colleenyoung

Hi @ketomom! I'm so glad you joined us in the new group. I remember you from your participation in our webinar/video Q&A sessions with Mayo experts. Did you see that we have another #AsktheMayoMom session coming up on Dec 15 at 10am CT? This time it is about Pediatric Epilepsy Surgery. See info here: http://mayocl.in/2hd4uEg

Would you mind starting a new discussion in the group specific to dietary intervention? It would be great to learn from your and Christina's experience with diet and epilepsy management, as well as to hear what other members have tried - what has worked and what hasn't.

I suggest starting a new discussion so that the diet conversation doesn't get lost in the introductions thread. Here's how to start a new discussion:
1. Go to the Epilepsy group homepage http://mayocl.in/2gJltuq
2. Click the gray button that says START A DISCUSSION.
3. Write a title and message with your question.
4. Click CREATE DISCUSSION.

Thanks in advance.

Margaret_Marie

Dec 7, 2016 by @Margaret_Marie in Epilepsy & Seizures · View  

#AsktheMayoMom about Pediatric Epilepsy Surgery

 Dr. Angela Mattke and Dr. Nick Wetjen, pediatric neurologist, discuss pediatric epilepsy surgery in #AsktheMayoMom about Pediatric Epilepsy Surgery. Learn more about:

  • Intractable epilepsy
  • Surgical treatment of epilepsy
  • Different categories of epilepsy surgery
  • Types of epilepsy where surgery is more usefully in controlling intractable seizures

Dr. Mattke and Dr. Wetjen answer questions posted before and during the event

Request an appointment.

colleenyoung

Colleen Young, Connect Director responded Dec 9, 2016 · View

Hi @blath2000 @ketomom @hermsenk @punkin312 @inkdfrog @sarahv @erinorb @kelly8573 @andrearmay @fritacca @jruza @sbruce @mikearons50 @grandma @krd94 We're hosting another #AskTheMayoMom about pediatric epilepsy on Dec 15 at 10am CT. During this video Q&A Dr. Angela Mattke and guest Dr. Nick Wetjen, pediatric neurologist, will talk about pediatric epilepsy. You can participate by asking questions; Click View & Reply to see the details. You do not need a Facebook account to be able to watch the [...]

kanaazpereira

kanaazpereira, Connect Moderator responded Dec 15, 2016 · View

Hi @jruza, A while ago, you had a question about your son who has SCN1A mutation with GEFMS+ and would someone with intractable epilepsy be a good candidate for surgery. We brought your question to #AsktheMayoMom about Pediatric Epilepsy Surgery, a video discussion with Dr. Angela Mattke and Dr. Nick Wetjen from Mayo Clinic. Here is their video response: http://mayocl.in/2hd4uEg Jen, how is your son doing?

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TonyHart87

Hello @hermsenk, I'm sorry to hear that things have been tough with your son. Hang in there! I've moved your question over to the "Post a Question" section for the upcoming webinar. https://connect.mayoclinic.org/discussion/askthemayomom-about-pediatric-epilepsy/

If you'd like to Connect with people who are also dealing with epilepsy, I encourage you to participate in the Brain & Nervous System group discussions on Connect too: https://connect.mayoclinic.org/group/brain-and-nerve-diseases/ It's nice to know you are not alone.

TonyHart87

Nov 7, 2016 by @TonyHart87 in Mayo Clinic Champions · View  

Webinar: Pediatric Epilepsy

On Thursday, Nov. 17, at 1:30 p.m. CST, tune in to Facebook Live. Angela Mattke, M.D., Pediatric and Adolescent Medicine, and Elaine Wirrell, M.D., Neurology will host an #AsktheMayoMom session about pediatric epilepsy.children-16-x-9-1024x576-1024x576

Learn more about:

Mattke and Wirrell will answer questions live during the event. Sign up to receive email reminders. Post a question before and during the event.

 

Helpful links

TonyHart87

Tony Hart, Champions Coordinator responded Nov 16, 2016 · View

Hello @hermsenk, I'm sorry to hear that things have been tough with your son. Hang in there! I've moved your question over to the "Post a Question" section for the upcoming webinar. https://connect.mayoclinic.org/discussion/askthemayomom-about-pediatric-epilepsy/ If you'd like to Connect with people who are also dealing with epilepsy, I encourage you to participate in the Brain & Nervous System group discussions on Connect too: https://connect.mayoclinic.org/group/brain-and-nerve-diseases/ It's nice to know you are not alone.

kanaazpereira

kanaazpereira, Connect Moderator responded Dec 15, 2016 · View

Hello @hermsenk, We also brought your question about your son to #AsktheMayoMom about Pediatric Epilepsy Surgery, a video discussion with Dr. Angela Mattke and Dr. Nick Wetjen from Mayo Clinic. Here is their video response: http://mayocl.in/2hd4uEg I sincerely hope this helps.

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Margaret_Marie

Nov 2, 2016 by @Margaret_Marie in Epilepsy & Seizures · View  

#AsktheMayoMom about Pediatric Epilepsy

Dr. Angela Mattke and Dr. Elaine Wirrell talk about pediatric epilepsy during an #AsktheMayoMom session.

Learn more about:

Dr. Mattke and Dr. Wirrell answer questions.

kanaazpereira

kanaazpereira, Connect Moderator responded Dec 11, 2016 · View

Hi @clairesmom, Welcome to Connect. I'm so sorry that you have to see your daughter go through this, but I'm glad you joined us. You will see that I have moved your discussion to this group titled, "Ask the Mayo Mom about Pediatric Epilepsy" If you scroll up. you can watch and hear Mayo Clinic Dr. Mattke and Dr. Wirrell discuss pediatric and intractable epilepsy. Here is a quick link to another Mayo Clinic webinar [...]

clairesmom

clairesmom responded Dec 11, 2016 · View

Hello. Thank you. My daughter is a patient at Mayo Clinic. We travel 14 hours each way to go there every 3 months. I've done a lot of research and we have the keto diet pretty well down. We make our own recipes so our daughter can have the same meals we have (with some additional tweaks for her). We have had genetic testing and the gene mutation for Glut 1 was not found at [...]

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Margaret_Marie

Hi, @sascha2432. Thank you for participating in our #AsktheMayoMom broadcast! We're sorry we didn't get time to answer your question live. Here's a response from Dr. Dearani: This is a well-documented late problem following the Fontan procedure. A knowledgeable cardiologist should be involved with medical management and gathering imaging and other medical testing to determine whether there is a role for a cath lab intervention, or surgery, or transplantation in some instances.

Margaret_Marie

Hi, @goodgrief16. Thank you for participating in our #AsktheMayoMom broadcast! Here's a response from Dr. Dearani you may find helpful: A newborn with heart enlargement to this degree can be quite challenging to manage after delivery. The decision of whether to operate or not would be determined at that time. The cone procedure is generally reserved beyond the newborn period and preferably between 2-5 years of age. If surgery is required in the first few months of life the operation that gets advised is generally based on the experience of the surgeon and the institution.

Margaret_Marie

Hi, @hannahfgibson. Thank you for asking a question during our #AsktheMayoMom broadcast! We're sorry we didn't have time to answer your question during the broadcast. Here is a response from Dr. Dearani: It appears that your son is going down the treatment algorithm that ultimately results in the Fontan procedure. Anatomy of the criss cross heart is complex but the details of this are less critical if the decision has been made to go down the Fontan pathway. The surgery for the Fontan procedure (most often) is done without interfering with any of the internal anatomy of the heart.

colleenyoung

Hi @julioborhidan I think you might have intended to ask your question in the upcoming Video Q&A with Dr. Dearani, cardiac surgeon, happening on Oct. 20. If yes, please repost your question here:

#AsktheMayoMom about Pediatric Congenital Heart Defects http://mayocl.in/2dLzuK9

Margaret_Marie

Hi @karenheather. Dr. Gargollo answers your question during the #AsktheMayoMom session! Watch the video posted above to hear Dr. Gargollo's response.

gabrielamorabarthel

Hola @guadalupe. ¡Bienvenida a Connect! Es muy difícil cuando alguien que queremos recibe un diagnóstico de cardiopatía hipertrófica y además con síndrome de Noona, especialmente cuando su hija es tan pequeña. Hemos movido su mensaje a este grupo en español y aunque todavía no hay miembros con este tipo de experiencia que hablen el idioma, tal vez podría considerar postear su mensaje en este otro grupo en inglés:

https://connect.mayoclinic.org/discussion/hello-i-was-diagnosed-with-hocm-last-year-i-have-been-told/

y usar un traductor como Google. Pero le agradecemos que nos escriba en español porque ésto nos va a ayudar a que otras personas puedan unirse a esta conversación.

Me da gusto que se ha contactado con @cynaburst de nuestro grupo de Cardiomyopathy, ella habla algo de español y la puede ayudar.

El próximo jueves 20 de octubre a las 4:00 pm (Central) haremos un Facebook en vivo con la Dra. Angela Mattke y el Dr. Joseph Dearani, Cirujano Cardiotorácico y Jefe de Cirugía Cardiaca para una sesión de #AsktheMayoMom sobre enfermedades cardiovasculares congénitas pediátricas. Los doctores van a estar contestando preguntas en vivo.

¿Además de la cirugia, hay alguna otra opción de tratamiento que haya recomendado el equipo médico que atiende a su hija?