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Digestive (Gastrointestinal) Problems

This group is for people interested in Digestive (Gastrointestinal) Problems. Join the discussion! Post your question, share your story, or just say hello to the rest of the group via the "What would you like to say?" box below. You can also view ongoing discussions by selecting the "Search Discussions" tab or find other helpful links under "Resources."

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Margaret Shepard (@margieshepard) posted in Digestive (Gastrointestinal) Problems · Thu, Jul 31 2:44pm · View  

There's a complex ecosystem deep inside your gut, home to trillions of bacteria armed with the power to help – or harm – you. “We are coming to terms with the fact that gut bacteria form an additional, really important factor when we think about how people get disease and how treatment affects them,” said Dr. Purna Kashyap, associate program director of the Mayo Clinic’s Microbiome Program.

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LS4 (@lisas444) posted in Digestive (Gastrointestinal) Problems · Thu, Jul 31 10:01am · View  

I have a daughter with Sclerosing Mesenteritis, diagnosed in 2008 at age 14, and a pretty aggressive form of it unfortunately. We have a pretty amazing support group that we started with 57 members in it to date last year. If anyone with Sclerosing Mesenteritis or Mesenteric Panniculitis wish to join or find out more information about it, please respond or email me. It's a wonderfully based support, sharing, all forms of SM and MP are discussed and shared, it's a private group so won't post it here, but rather, contact me and I'll get you to where you need to go! We talk, share, newbies are greatly welcomed with love and open arms, great files and information, meds discussed, treatments discussed, and also creating a state wide database as to what docs will treat SM in the states we're all located in. My kiddo has had 17 abdominal surg with this dreaded disease and she is inpatient frequently, an ostomy now as well as there are others on our group as well, and again TPN dependent, as well as some others on our site are as well, some aggressive forms, some fatal, some mild, and some in the middle of this disease. We'd love to have you!

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BillyMac65 (@billymac65) posted in Digestive (Gastrointestinal) Problems · Recent activity · Thu, Jul 31 9:53am · View  

Mesenteric Panniculitis or Schlerosing Mesentertis (Auto-immune around small intestine)

I thought I would start a discussion for patients with Mesenteric Panniculitis. From what I know, this auto-immune disorder has three stages to it, each with differing names (Mesenteric Panniculitis, Schlerosing Mesenteritis, Retractile Mesenteritis). Typically, this appears to be in older individuals with some other under-lying problem (Lymphoma, tumor, diverticulitis).

I have an atypical presentation because I do not have an underlying cause. The doctors seem to be hoping for Lymphoma to appear so they can treat it and have the auto-immune go away. I am interested in hearing from others with this. I had this diagnosed in 2011, so I am interested in hearing more about what this is like to live with. I want to hear from others who also have an atypical presentation. Did is come back? Also interested in hearing from those with Lymphoma. How was the treatment? Did it address the auto-immune?

Pretty much, I am interested in hearing from anyone who has had this, so i can better understand it, and not feel so alone with this!!

Bill

LS4 (@lisas444) responded:

Hi there, saw your posts on here about SM and MP. We have a support group with 57 members if you're interested. It's a private group to be able to share, support, receive support, doc info, meds, etc. I'm a mom with a pediatric kid with SM. If you write back I can give you the contact info if you'd like. No, it's not the yahoo group either. That site has information in files, but [...]

Posted 20 hour(s) ago · View

LS4 (@lisas444) responded:

Hi there, I saw your posts on here about SM and MP. We have a support group with 57 members if you're interested. It's a private group to be able to share, support, receive support, doc info, meds, etc. I'm a mom with a pediatric kid with SM. Please write back I can give you the contact info if you'd like. No, it's not the yahoo group either. That site has information in files, but [...]

Posted 20 hour(s) ago · View
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MarkM (@markmor456) posted in Digestive (Gastrointestinal) Problems · Recent activity · Wed, Jul 30 4:02pm · View  

Been recently diagnose with meseteric panniculitis 2 months ago been dealing with it since Oct 2013.looking for input,
Thanks

LS4 (@lisas444) responded:

She was diagnosed in 2008 . . . age 14.

Posted 1 day(s) ago · View

LS4 (@lisas444) responded:

and yes pathology was done when they had her open on the table . . . sent to 4 pathology sites with the same diagnosis. Thru Children's in OKC, St. Louis, Vanderbilt and Salt Lake . . . she's still alive . . but the outcome isn't good.

Posted 1 day(s) ago · View
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Mark (@vmc123) posted in Digestive (Gastrointestinal) Problems · Recent activity · Wed, Jul 30 3:53pm · View  

Has anyone ever filed for social security disability because of sclerosing mesenteritis? Was diagnosed in 2010, had to leave my job of 35 years in 2012 because of this stupid disease! Any feedback would be greatly appreciated. Thanks

Mark (@vmc123) responded:

Hi, I'm Mark from NC, diagnosed in 2010, applied in 2012. Waiting on a hearing date. Would like to discuss more about this with you. Thanks Sent from Samsung tablet

Posted 1 day(s) ago · View
LS4 likes this

LS4 (@lisas444) responded:

Hi Mark, my email is lisas444@yahoo if you want to talk. There is another guy that is 31 that was approved recently. I have the Order and am using it. Do you have an attorney? My kiddo has had 17 abdominal surgeries now . . she's still alive.... no quality of life, several months a year inpatient . . .TPN dependency, etc. My name is Lisa btw! :)

Posted 1 day(s) ago · View
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Margaret Shepard (@margieshepard) posted in Digestive (Gastrointestinal) Problems · Wed, Jul 16 8:20am · View  

The first thing you should do when thinking about taking a probiotic is take a hard look at your diet and your exercise regimen. “Variety in your diet is very important. Eating healthy, unprocessed foods from a variety of sources will encourage a healthy gut. I really suggest letting your micro biome do what it does.” says Nicholas Chia, PhD, associate director of the microbiome program at the Mayo Clinic’s Center for Individualized Medicine.

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Virginia Franzen (@ginnydoll) posted in Digestive (Gastrointestinal) Problems · Fri, Jul 11 8:15am · View  

I have Sphincter of Oddi Dysfuncfion. It causes severe upper abdominal pain, a lot like a gallbladder attack. I was misdiagnosed for ten years and have still had problems, pain that required medication and the ER every once in a while. The pain has suddenly gotten so much worse. I also struggle with Pseudo Tumor Cerebri which causes massive headaches. I am getting spinal taps every 5 weeks, they do not work on the headaches but we are trying to keep me from going blind from the Sphincter of Oddi.

Margaret Shepard (@margieshepard) responded:

Thanks for your post, @Virginia Franzen. Has any one else experienced Sphincter of ODDI dysfunction?

Posted Fri, Jul 11 at 8:15am CDT · View
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Margaret Shepard (@margieshepard) posted in Digestive (Gastrointestinal) Problems · Wed, Jul 9 1:25pm · View  

Pitch for Prevention

You and a guest are invited to join Mayo ClinicFight Colorectal Cancer and Ed Randall’s Fans for the Cure at 4 p.m. on Monday, July 21 at Target Field as we encourage baseball fans to “pitch in” to prevent prostate and colorectal cancer.

The event includes:

  • Educational reception featuring Mayo Clinic physicians
  • Champion's March onto Target Field
  • Group seating for the Minnesota Twins game against the Cleveland Indians

For more information and to register, visit the Pitch for Prevention Prostate and Colorectal Cancer Champions Event page.

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