Digestive (Gastrointestinal) Problems
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Was my gluten challenge too short?
My daughter tested very positive for Celiac which was confirmed with the Endoscopy. Her doctor suggested that my wife and I get tested.
We had thought that I may have it as well as I had been on a extremely low carb diet that one of my doctors put me on to help control my
reflux, which a lot of issues went away shortly after going onto the diet. I checked with my primary doctor to see how long I need to do the
gluten challeng and he said to eat a normal gluten based diet for a week (what is a normal gluten based diet?)
I checked with my gastro doc and he said to eat 4 slices of bread a day for 4 weeks. The thought that I may have
it came from about 2 weeks before my daughter was tested and I had a few glasses of Whiskey (cheap stuff) and the next day stomach
cramps and many visits to the bathroom. Everyone passed it that I was hung over, which I have never been before.
A week or two later I have even less whiskey and get sick again (black velvet whiskey)
The next day I have a piece of cake and I get sick yet again.. Not really knowing what is going on.
My daughter gets tested and comes back positive. I start the gluten challenge and it was hell for 4 weeks. Massive fatigue comes back,
bruises all over again, stomach cramps (whcih were new), many visits to the bathroom (new), socially withdrawn, gained 25 lbs and massive
appetite came back.
Reading on the celiac disease foundation site they suggest a 12 week period for a gluten challenge.
Was mine too short?
My doctor ordered 2 tests. The Tissue Transglutaminase IGA and the Gliadin Antibody IGA.
Both came back negative, but online reading suggests that anything short of 6 weeks is too short and you will get a negative result.
2 days after I had stopped the gluten challenge, I feel a ton better.
Do I see a different doctor and restart the gluten challenge for longer (I would hate to restart it again)?
I thought I would start a discussion for patients with Mesenteric Panniculitis. From what I know, this auto-immune disorder has three stages to it, each with differing names (Mesenteric Panniculitis, Schlerosing Mesenteritis, Retractile Mesenteritis). Typically, this appears to be in older individuals with some other under-lying problem (Lymphoma, tumor, diverticulitis).
I have an atypical presentation because I do not have an underlying cause. The doctors seem to be hoping for Lymphoma to appear so they can treat it and have the auto-immune go away. I am interested in hearing from others with this. I had this diagnosed in 2011, so I am interested in hearing more about what this is like to live with. I want to hear from others who also have an atypical presentation. Did is come back? Also interested in hearing from those with Lymphoma. How was the treatment? Did it address the auto-immune?
Pretty much, I am interested in hearing from anyone who has had this, so i can better understand it, and not feel so alone with this!!
I was diagnosed with Stage I colorectal 3/12, Had surgeries and chemo, and was declared NED. Then 12/13 it was back, Stage IV, mets to lung and liver. I've had chemo again and am now NED (Thank God), but am on Xeloda, and have been told it was for the rest of my life. I also take Chinese herbs and IV Vitamin C, so don't really know what has helped. I'm currently taking Xeloda, one week on, one week off : 1000mg BID.
Has anyone else taken Xeloda for a long period of time, and if so, what are the long term side effects. I have painful neuropathy in my feet and would like it to go away!
Thanks for all your help and support (I'm open to any questions about my journey & tricks that I believe have helped me)
My son has been ill for about 8 weeks now. He is 16 years old. Symptoms started with nausea, diarrhea and vomiting and have progressively gotten worse. These are daily occurrences but very bad in the morning and then tapering off to just nausea and diarrhea for the rest of the day. He has also complained of a mild back ache. He has to date lost 27 pounds. He sleeps about 16 hours a day. He drinks an abundance of fluids but never "a meal," mostly just snacking on yogurt, rice, bananas, occasionally a half a sandwich, etc.
He has seen several doctors and is currently seeing a GI specialist. He has had multiple blood tests, stool tests, a ct scan, colonoscopy and upper gi all results were normal. His doctor recently put him on Flagyl in the event something was missed and my son thinks that makes it worse.
I'm have requested an appointment through Mayo Clinic. I am beyond frustrated. My son cries daily (he has never been an emotional young man) and has recently stated that he thinks he is dying. Of course this is just awful to hear from anyone let alone your child. Prior to this he was never sick a day in his life, when I brought him to the doctor at 14 for immunizations they actually had to look in the archives for his records. He has always been very healthy.
I am just consumed with trying to help him to the point where I am having a difficult time sleeping.
I don't know if anyone can offer advise or can relate to his issues? I guess just venting on this forum is helpful.
I need to find a doctor who can treat my 22 year old for crohns. He is on remicade now ans has been since Febuary of this year 2015. He is doing great but.....
He was told he needs it for life. I'm not convinced of that.
His dr no longer takes his ins. so we need another dr whom I trust who can take over his care.
Have anyone ever had the sleeve gastrectomy at Mayo Clinic and what Dr. did you use?
Maybe someone else had this problem. 98% of the time i eat and then i get pains in my stomach and have to use bathroom. Sometimes the pain can last five days or more. I know i have kidney stones and maybe thats part of the problem.
Hello, I have been having digestion issues such as being gassy with difficulty relief from it for a long time. Also, last few months I have had heart burn, and tightness of breath. I have had my heart check and my heart is fine with no relation to the tightness of breath. It has been about a month that I have developed smelling a burn like smell.... For a while I did not think it may be inside my body. After a while I have noticed wherever I go the smell follows me. It is not a body odor :). The smell is in my nose. But, I notice anywhere I went the smell was there too. I have explained to a couple of Doctors, and their reaction was not of a certain diagnosis because they have not tested me for it. But, they thought it may be rising from my stomach(inside). So, I thought to post it here to see if anyone has heard of such an issue, and can suggest what kinds f tests I should have done for diagnosis! Thank you in advance.
I have a j pouch. Who do you use for follow up care? I always want back to my surgeon but he is now retired.
IBS affects people of all ages, although it tends to start before 35, perhaps due to the lifestyle shifts that occur as you transition into college and your first jobs, says Mark Larson, M.D., a gastroenterologist at the Mayo Clinic. â€śIn your 20s and 30s, so many things are changing. The anxiety about the future and relationships is much more intense, and your gut takes a hit from all that stress.â€ť Learn more about the signs, symptoms and treatment. Do you suffer from IBS? Have any tips for others facing the same struggle?
Edited: 09/01/2015 @ 11:51am
According to the Celiac Disease Foundation, one-third of the population claims to suffer from gluten sensitivity, and researchers at the Mayo Clinic say the number of patients reporting gastrointestinal symptoms has quadrupled over the past 60 years! So what happened?
Some people think that ancient grains may be the solution to the problem. Check out the link and then answer our poll - do you suffer from symptoms of gluten sensitivity?
Edited: 08/26/2015 @ 10:06am
Five years ago, I had to have an emergency hysterectomy with delivery of my son. A couple doctors told me that I am lucky to be alive after that procedure and have had more procedures in my abdomen area since that time. Around Christmas, my stomach swelled overnight to where I look 8 months pregnant. It is almost daily that someone asks when I am due. I have gained 45 pounds and went from wearing a size 8 to barely being able to button a 14. I have seen every doctor imaginable - have been to a colorectal surgeon, a GI doc, pelvic floor therapy, therapy to release scar tissue in my stomach, OB/GYN, urogynocologist, lymphedema specialist, you name it. My stomach never goes down at all - no matter if I prep for a test that requires me to drink tons of laxatives and use an enema. I have been tested for celiac disease. All tests come back normal. I am nauseous a lot, short of breath, beyond tired, have pelvic and back pain and pressure. My normally low blood pressure has shot up to staying around 156/94 so I am now on medicine to control that. I am a mother of 4 (who is not able to be a "normal" mom) and am struggling with my issues and not finding any relief. Every doctor I see agrees there is a problem, but no one knows what the issue is or seems to care how it is effecting my life. The most recent came back that it is probably just IBS. I have ran out of my FMLA and all of my leave at work and am on the verge of being let go because of not being able to work 8 hours a day. I do have an appt scheduled at the Mayo Clinic in September and have been gathering all of my records from various doctors, various tests, etc. I don't know where else to go and pray that going through the expense of getting to my appt. and staying for testing will work in my favor.
I AM A 52 YEAR OLD WOMAN WHO BECAME ILL AT 24. I ALWAYS SUFFERED FROM SEVERE CONSTIPATION, BUT IN MY EARLY 20'S I STARTED EXPERIENCING SEVERE FATIQUE, JOINT PAIN AND SEVERE GASTO ATTACKS. AFTER MANY DOCTOR VISITS I WAS DIAGNOSED WITH GENETIC BLOOD DISEASES AND CONNECTIVE TISSUE DISEASE. I HAVE HAD 13 SURGERIES AND EACH ONE RESULTED IN INFECTION AND VERY LONG RECOVERIES. I AM NOW AT A POINT THAT THE ONLY WAY TO KEEP ME ALIVE, DUE TO THE BLOCKAGES, IS TO DO A FULL COLECTOMY AND RE-ATTACH THE RECTOCILE. SINCE I HAVE CONNECTIVE TISSUE DISEASE I WAS TOLD THAT REMOVING THE COLON IS NOT AN OPTION BECAUSE THE RESECTION WILL DETACH AND I WILL BECOME SEPTIC. THEY CAN'T FIX THE RECTOCILE BECAUSE THEY SAID THAT AFTER SO MANY ABDOMINAL SURGERIES, THE SCAR TISSUE IS VERY EXTENSIVE AND IF THEY REMOVE IT, DUE TO THE CONNECTIVE TISSUE DISEASE, I WILL BECOME SEPTIC. AFTER 10 DIFFERENT EXTENSIVE CONSULTS, I WAS BASICALLY TOLD THAT MY ONLY OPTION WAS TO GO HOME, WHICH IS WHERE I AM ALL THE TIME BECAUSE I AM TOO WEAK, FATIQUED, NAUSOUS AND FILLED WITH JOINT PAIN TO GO ANYWHERE. I STILL CAN'T BELIEVE THERE IS NOT A WAY FOR A SURGEON TO HELP ME, EVEN IF THERE WAS A POSSIBILITY OF PUTTING IN AN NG TUBE . ANY THOUGHTS OF SUGGESTIONS WOULD BE GREATLY APPRECIATED!!
Edited: 08/23/2015 @ 9:05am
Honestly I do not know where to begin. In 1997 I had emergency abdominal laparotomy & hemicolectomy and retrocecal appendicitis with a side to side resection done with removal of about 14-16" removal of small bowel. All sorts of digestive, absorption difficulties since that time. Can you advise best means to stabilize my body needs of electrolytes, safely lower weight of 149 lbs. to a possible 115 to 120 (I am 5'2") I have other medical issues HP, Auto immune disorder of Polymyalgia Rheumatica (in remission) Osteoporosis due to premature menopause. I am now 78 and want to deal with these issues the best I can. Obviously with the loss of that much of the bowel my absorption of almost everything (food, medicines) do not stay in my system long enough to do what is needed. Thank you for any input or suggestions.
Doctors say thereâ€™s less reason than ever for certain cancer patients to fear the colostomy bag. Medical advances are making it easier for the 40,000 Americans diagnosed with rectal cancer each year to resume normal lives after treatmentâ€¦â€śRectal cancer treatment has undergone significant improvements over the last 20 years on all fronts,â€ť says Robert Cima, a colorectal surgeon at Mayo Clinic in Rochester, Minn.
I am a relatively healthy person with a problem "bloated belly". My belly gets bigger as the day goes on; doesn't matter if I eat, drink only water, my belly still gets more bloated. The bloat continues up the abdomen into the midriff area...I have to loosen bra or put on a bigger one. This happens everyday. Pretty good in the morning.
Need advice with all my symptoms. I have been to 5 ER's, 2 ct scans, 1 mri, endo and colonoscopy, ultrasound so far for my abdominal pain. Also had many blood tests. Here are my symptoms for the past 6 months that just get worse with time
Sever bloating all day, stomach sticks out, not able to pass gas, feels like i have to have a bowel movement even after having one. I sleep fine, but as soon as i wake up and have bowel movement, im in horrible pain all day till i go to sleep. Pain in left side of abdomin. Its deep pain. Barely can pee, it burns after peeing and i dont have UTI.
The blood tests i had were for Lyme (neg), celiac desease (neg), STD's (neg), antinuclear antibody (positive), Think blood test (positive).
The Ct scan found fatty tissue on my colon, with swollen lymph nodes. Lesion on my liver and 3 lesions on my spine. Were not cancerous as of now. The scan i had later showed none grew it size. The endoscopy only showed a raw stomach so doubled my prilosec mg. The colonoscopy found nothing.
But with all this, i get prescribed meds for IBS. Is this IBS? im in horrible pain all day with the bloating.
I would like to add this has given me bad anxiety.
Very quick summary:
- 20 yr old
- have had chronic anal pain for 6 years
- been to many many doctors and had first been told there was no evidence of anything on my rectum. the next doctor said it was a hemorrhoid (telling me to eat more fiber and drink more water). the next, a thrombosed hemorrhoid. even one doctor said it was an inflamed varicose vein. then I went to see another doctor when the pain did not go away after years and years of this, and I was told it was an anal fissure. I then had the botox injection to heal the fissure (during which the doctor found 4) and because the area was numbed for days afterwards, I could not feel how hard I was straining to go to the bathroom and I developed a new hemorrhoid.
Today I am certain that same hemorrhoid turned into a skin tag which I have had for months now. The same doctor who performed the botox injection suggested I could have crohns because of all the fissures I had before. I did some research and think I could have perianal crohns. Most of my symptoms match up. I also have had very bad heartburn for years as well as constipation which I wonder could be a symptom as well. I take stool softeners everyday and have tried everything, (I am gluten-free and vegan for years) but still every time I go to the bathroom I am in excruciating pain.
I spend my summer in Colorado in the mountains and I think the altitude makes the pain worse. I recently ended up in the emergency room (my second visit just for fissure/hemorrhoid pain) because the pain after going to the bathroom was just too bad. They gave me a prescription for the pain killer norco to take after I go to the bathroom because the pain is too horrendous. That helps but constipates you which is even worse for fissures/hemorrhoids/skin tags. I do not know what to do, after I go I cannot move for hours, the pain lasts for as long as 14 hours.
I have tried everything, and have had chronic pain for 6 years now and just want to figure out a diagnoses. Every doctor has told me something different, I know crohns is difficult to diagnose, but I feel like this could be it.
Can anyone help me figure out what this is and if it does indeed sound like perianal crohns? I cant take it anymore
Edited: 08/10/2015 @ 1:48pm
Hi my name is Lou and have been Diagnosed with diverticulitis. My Dr. Gave me some antibiotics and with in a few days was under control and by the end of my script it was hardly noticeable and finally all symptoms went away. My question is will I always have this issue or can I look forward to a day where I am free of it? In the last four months I've been on antibiotics twice do to diverticulitis.
I have chronic constipation. I've been taking miralax. Sometimes it will help for a couple of days. Once in awhile I will have sort of a normal bowel movement or other times it's just a small amount of feces comes out.
I have very dry mouth and my salivary glands are almost not working at all. I also have Interstitial Cystitis which makes it difficult to eat the right foods because of everything almost irritating my bladder and Citric acid is a no, no. I'm sure I must be deficient in a lot of vitamins and minerals. They say that constipation is one of the side effects of this disease. I have to wear a denture on the top of my mouth which is very uncomfortable do to my very mouth. Can't chew foods so I use a food processor. Can't eat foods that cause gas because it gives me terrible pain and sometimes nausea. I have depression and anxiety.
Antidepressants didn't help me. I need to find a doctor who can work with me but I can't seem to find one here in New Port Richey, Florida where I live. I also can't sleep. I need help. Please.