Digestive (Gastrointestinal) Problems
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There's a complex ecosystem deep inside your gut, home to trillions of bacteria armed with the power to help – or harm – you. “We are coming to terms with the fact that gut bacteria form an additional, really important factor when we think about how people get disease and how treatment affects them,” said Dr. Purna Kashyap, associate program director of the Mayo Clinic’s Microbiome Program.
I have a daughter with Sclerosing Mesenteritis, diagnosed in 2008 at age 14, and a pretty aggressive form of it unfortunately. We have a pretty amazing support group that we started with 57 members in it to date last year. If anyone with Sclerosing Mesenteritis or Mesenteric Panniculitis wish to join or find out more information about it, please respond or email me. It's a wonderfully based support, sharing, all forms of SM and MP are discussed and shared, it's a private group so won't post it here, but rather, contact me and I'll get you to where you need to go! We talk, share, newbies are greatly welcomed with love and open arms, great files and information, meds discussed, treatments discussed, and also creating a state wide database as to what docs will treat SM in the states we're all located in. My kiddo has had 17 abdominal surg with this dreaded disease and she is inpatient frequently, an ostomy now as well as there are others on our group as well, and again TPN dependent, as well as some others on our site are as well, some aggressive forms, some fatal, some mild, and some in the middle of this disease. We'd love to have you!
I thought I would start a discussion for patients with Mesenteric Panniculitis. From what I know, this auto-immune disorder has three stages to it, each with differing names (Mesenteric Panniculitis, Schlerosing Mesenteritis, Retractile Mesenteritis). Typically, this appears to be in older individuals with some other under-lying problem (Lymphoma, tumor, diverticulitis).
I have an atypical presentation because I do not have an underlying cause. The doctors seem to be hoping for Lymphoma to appear so they can treat it and have the auto-immune go away. I am interested in hearing from others with this. I had this diagnosed in 2011, so I am interested in hearing more about what this is like to live with. I want to hear from others who also have an atypical presentation. Did is come back? Also interested in hearing from those with Lymphoma. How was the treatment? Did it address the auto-immune?
Pretty much, I am interested in hearing from anyone who has had this, so i can better understand it, and not feel so alone with this!!
Has anyone ever filed for social security disability because of sclerosing mesenteritis? Was diagnosed in 2010, had to leave my job of 35 years in 2012 because of this stupid disease! Any feedback would be greatly appreciated. Thanks
The first thing you should do when thinking about taking a probiotic is take a hard look at your diet and your exercise regimen. “Variety in your diet is very important. Eating healthy, unprocessed foods from a variety of sources will encourage a healthy gut. I really suggest letting your micro biome do what it does.” says Nicholas Chia, PhD, associate director of the microbiome program at the Mayo Clinic’s Center for Individualized Medicine.
I have Sphincter of Oddi Dysfuncfion. It causes severe upper abdominal pain, a lot like a gallbladder attack. I was misdiagnosed for ten years and have still had problems, pain that required medication and the ER every once in a while. The pain has suddenly gotten so much worse. I also struggle with Pseudo Tumor Cerebri which causes massive headaches. I am getting spinal taps every 5 weeks, they do not work on the headaches but we are trying to keep me from going blind from the Sphincter of Oddi.
You and a guest are invited to join Mayo Clinic, Fight Colorectal Cancer and Ed Randall’s Fans for the Cure at 4 p.m. on Monday, July 21 at Target Field as we encourage baseball fans to “pitch in” to prevent prostate and colorectal cancer.
The event includes:
For more information and to register, visit the Pitch for Prevention Prostate and Colorectal Cancer Champions Event page.
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