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Digestive (Gastrointestinal) Problems

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BillyMac65 (@billymac65) posted in Digestive (Gastrointestinal) Problems · Recent activity · Sat, Dec 20 8:52pm · View  

Mesenteric Panniculitis or Schlerosing Mesentertis (Auto-immune around small intestine)

I thought I would start a discussion for patients with Mesenteric Panniculitis. From what I know, this auto-immune disorder has three stages to it, each with differing names (Mesenteric Panniculitis, Schlerosing Mesenteritis, Retractile Mesenteritis). Typically, this appears to be in older individuals with some other under-lying problem (Lymphoma, tumor, diverticulitis).

I have an atypical presentation because I do not have an underlying cause. The doctors seem to be hoping for Lymphoma to appear so they can treat it and have the auto-immune go away. I am interested in hearing from others with this. I had this diagnosed in 2011, so I am interested in hearing more about what this is like to live with. I want to hear from others who also have an atypical presentation. Did is come back? Also interested in hearing from those with Lymphoma. How was the treatment? Did it address the auto-immune?

Pretty much, I am interested in hearing from anyone who has had this, so i can better understand it, and not feel so alone with this!!

Bill

AML (@amilhim) responded:

is there a cure for Mesenteric Panniculitis? someone I know has just been diagnosed with this disease after so many years of episodic abdominal pain and apparently wrong diagnosis. she is in her late seventies, is it normal at this age?

Posted Wed, Oct 15 at 6:56am CST · View

Hardclose (@hardclose) responded:

I'm new to the board, so here is my story...I've been struggling with acid reflux since Aug 2011 and my doctor was running out of treatment options so he ordered a CT. The CT showed Sclerosing Mesenteritis and also found out that I had slow gastric emptying aka Gastroparesis. Just heard yesterday that I have igG4 labs that are elevated to 163. I have suspected that I may have acquired H Pylori in 2011 but [...]

Posted 20 hour(s) ago · View
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ferrera nid (@nidfer63) posted in Digestive (Gastrointestinal) Problems · Sat, Dec 13 9:43pm · View  

3 Hi I want to say that I have gastritis and I [...]

3 Hi I want to say that I have gastritis and I having burning and pain.what can I do

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Tudormom (@wildcatwilma) posted in Digestive (Gastrointestinal) Problems · Thu, Dec 11 9:24am · View  

Do you have a group on Eosinaphallic Eosphagatis?

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Marilyn A (@marilyna) posted in Digestive (Gastrointestinal) Problems · Sun, Nov 16 9:08am · View  

I have been having stomach pains since February. I went to the doctor and they did blood test for several things. All the test came back fine. I was then told to have my gallbladder checked it is fine as well. With getting no results I went to see a dietitian and she put me on a gluten, dairy free diet. It has helped some but I still have stomach pains. I then went to see a chiropractor that deals with natural medicine he helped me for awhile but I'm having the pain more now. I still eat GF and DF ? I went back to the doctor and she did an H pylori test and it came back negative. I'm at a loss and I still have no answers I have requested to be seen at the mayo clinic in Minnesota. I'm waiting to hear back. I need answers. I have had no other test done.

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cynthia endriss (@cynthiaendrirss) posted in Digestive (Gastrointestinal) Problems · Sun, Oct 26 12:35pm · View  

My daughter has been diagnosed with a peptic ulcer. Since the diagnosis we have had ample visits to the urgent care. This morning I took her to the emergency room due to high anxiety level and pain.. They ran blood work and also ultra sound of organs. They found a splenic cyst, and said that it would need to be checked in 6 months. Is this something that needs to be addressed before 6 months?

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lyndask (@lyndask) posted in Digestive (Gastrointestinal) Problems · Wed, Oct 22 1:14am · View  

my son has chron's disease and never had surgery. he had one treatment of stem cell therapy in Mexico .I was shocked later to see how thin he has become. He says he will be going for more therapy as soon as he gains weight. I am afraid he is being scammed. how can I convince him to get help in U.S. and which hospital will accept a patient in severe condition with no insurance.I am willing to get it for him but am afraid we wont be able to find a company that will cover his pre-existing condition.Where is the best place to take him?

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Lou Pesci (@ilovebooks1943) posted in Digestive (Gastrointestinal) Problems · Mon, Oct 20 9:31pm · View  

Getting appt with specialist in burning mouth syndrome and h-pyloria

Have gone to 10 doctors and no one can eradicate either problem....now I feel sick all the time....need some answers.

Lou Pesci (@ilovebooks1943) responded:

Had two treatments of antibiotics...think that May have caused the Burning Mouth.

Posted Mon, Oct 20 at 9:31pm CST · View
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AML (@amilhim) posted in Digestive (Gastrointestinal) Problems · Tue, Oct 14 6:43pm · View  

is there a cure for Mesenteric Panniculitis? someone I know has just been diagnosed with this disease after so many years of episodic abdominal pain and apparently wrong diagnosis. she is in her late seventies, is it normal at this age?

Edited: 10/13/2014 @ 10:10am

Makala Johnson (@makalajohnson) responded:

Not sure if you have seen this discussion, but in case it's helpful, here is another discussion thread that talks about Mesenteric Panniculitis: http://connect.mayoclinic.org/discussion/mesenteric-panniculitis-or-schlerosing-mesentertis-auto-immune-around-small-intestine/.

Posted Mon, Oct 13 at 10:09am CST · View

AML (@amilhim) responded:

Thank you Makala

Posted Tue, Oct 14 at 6:43pm CST · View
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3 Hi I want to say that I have gastritis and I [...]

0 replies · Last response: Sat, Dec 13 at 9:43pm CST by ferrera nid

Do you have a group on Eosinaphallic Eosphagatis?

0 replies · Last response: Thu, Dec 11 at 9:24am CST by Tudormom

I have been having stomach pains since February. I went to the [...]

0 replies · Last response: Sun, Nov 16 at 9:08am CST by Marilyn A

my son has chron's disease and never had surgery. he had one [...]

0 replies · Last response: Wed, Oct 22 at 1:14am CST by lyndask

Getting appt with specialist in burning mouth syndrome and h-pyloria

1 replies · Last response: Mon, Oct 20 at 9:31pm CST by Lou Pesci

Lou Pesci

is there a cure for Mesenteric Panniculitis? my mother just been diagnosed [...]

2 replies · Last response: Tue, Oct 14 at 6:43pm CST by AML

like to know more about bacterial infection in the stom ach and [...]

1 replies · Last response: Tue, Oct 14 at 4:02pm CST by Margaret Shepard

could this make u looe weight? no appetite feeling tired. and weak

0 replies · Last response: Sun, Sep 28 at 3:25pm CST by natija

I had a colon interposition 7 years ago after a doctor punctured [...]

1 replies · Last response: Fri, Sep 26 at 12:54pm CST by Margaret Shepard

I have a daughter with Sclerosing Mesenteritis, diagnosed in 2008 at age [...]

3 replies · Last response: Thu, Aug 21 at 5:01pm CST by Erin11

At times my bowels moves a lot ,

0 replies · Last response: Wed, Aug 20 at 9:20am CST by susan easter

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