Digestive (Gastrointestinal) Problems
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Hi my name is Lou and have been Diagnosed with diverticulitis. My Dr. Gave me some antibiotics and with in a few days was under control and by the end of my script it was hardly noticeable and finally all symptoms went away. My question is will I always have this issue or can I look forward to a day where I am free of it? In the last four months I've been on antibiotics twice do to diverticulitis.
I thought I would start a discussion for patients with Mesenteric Panniculitis. From what I know, this auto-immune disorder has three stages to it, each with differing names (Mesenteric Panniculitis, Schlerosing Mesenteritis, Retractile Mesenteritis). Typically, this appears to be in older individuals with some other under-lying problem (Lymphoma, tumor, diverticulitis).
I have an atypical presentation because I do not have an underlying cause. The doctors seem to be hoping for Lymphoma to appear so they can treat it and have the auto-immune go away. I am interested in hearing from others with this. I had this diagnosed in 2011, so I am interested in hearing more about what this is like to live with. I want to hear from others who also have an atypical presentation. Did is come back? Also interested in hearing from those with Lymphoma. How was the treatment? Did it address the auto-immune?
Pretty much, I am interested in hearing from anyone who has had this, so i can better understand it, and not feel so alone with this!!
I have chronic constipation. I've been taking miralax. Sometimes it will help for a couple of days. Once in awhile I will have sort of a normal bowel movement or other times it's just a small amount of feces comes out.
I have very dry mouth and my salivary glands are almost not working at all. I also have Interstitial Cystitis which makes it difficult to eat the right foods because of everything almost irritating my bladder and Citric acid is a no, no. I'm sure I must be deficient in a lot of vitamins and minerals. They say that constipation is one of the side effects of this disease. I have to wear a denture on the top of my mouth which is very uncomfortable do to my very mouth. Can't chew foods so I use a food processor. Can't eat foods that cause gas because it gives me terrible pain and sometimes nausea. I have depression and anxiety.
Antidepressants didn't help me. I need to find a doctor who can work with me but I can't seem to find one here in New Port Richey, Florida where I live. I also can't sleep. I need help. Please.
I was diagnosed with IBS when I was 18. I'm now 30. Early in 2011, I saw a new GI doc for unexplained feelings of fullness after eating a very small amount of food, nausea and vomiting and severe pain- all revolving around eating. He ordered a gastric emptying studying and told me I had "mild delayed emptying," which he classified as "mild gastroparesis" on my chart. He gave me Zofran 4 mg to take as needed and hyosciamine for stomach spasms. At the beginning of this year, lost 15 pounds in 2 months due to the worsening of these symptoms. I've had many sleepless nights with a horribly painful distended stomach- last night being one of the worst- and I'm on 3 nausea medications- tigin, emend and marinol- and heavy doses of all 3. I was in the hospital in February for 2 weeks with an NG tube and sent home with the medications I mentioned. I was severely dehydrated when admitted, as I'm not always able to tolerate liquids either. My GI doc requested a psych consult and I was grilled by a psychiatrist and his nurse as soon as I had a bed and fluids had been started. The outcome of this was that I did not need additional psychological intervention. (I see a therapist every 2 weeks b/c of this and other chronic pain I deal with- Fibro and osteoarthritis). So here is where I'm at: I was supposed to get in with a doctor who has access to a trial drug, but I was denied access to the program because my scan only shows mild delayed emptying. Yet my symptoms are of someone with a very severe form of it. The psychiatrist determined it's not psychological. So what am I supposed to do?? The only reason I'm gaining weight is due to the marinol, which increases my appetite but then I have to deal with the pain and nausea of eating. I don't vomit as much, because of the drugs, but I still feel nauseated after eating (even on an full liquid diet). I've kept food diaries for years and tried everything. I tried gluten-free. I eliminated "toxic" chemicals (those found in diet pop), caffeine- you name it, I've tried it BEFORE this took over my llfe in January and I'm continuing to eat as tolerated but I'm in hell. Does anyone else have a gastric emptying test that shows mild delay, yet you have severe symptoms? If so, I would love to hear from you. I hate the marinol b/c it doesn't help much with the nausea and makes me want to eat, after which I feel horrible. Please please tell me there is someone like me out there, and that help is available. Any and all replies are appreciated.
P.S. I was in the ER last twice last week due to dehydration and pain that is unbelievable and off the charts. I don't understand
Need advice with all my symptoms. I have been to 5 ER's, 2 ct scans, 1 mri, endo and colonoscopy, ultrasound so far for my abdominal pain. Also had many blood tests. Here are my symptoms for the past 6 months that just get worse with time
Sever bloating all day, stomach sticks out, not able to pass gas, feels like i have to have a bowel movement even after having one. I sleep fine, but as soon as i wake up and have bowel movement, im in horrible pain all day till i go to sleep. Pain in left side of abdomin. Its deep pain. Barely can pee, it burns after peeing and i dont have UTI.
The blood tests i had were for Lyme (neg), celiac desease (neg), STD's (neg), antinuclear antibody (positive), Think blood test (positive).
The Ct scan found fatty tissue on my colon, with swollen lymph nodes. Lesion on my liver and 3 lesions on my spine. Were not cancerous as of now. The scan i had later showed none grew it size. The endoscopy only showed a raw stomach so doubled my prilosec mg. The colonoscopy found nothing.
But with all this, i get prescribed meds for IBS. Is this IBS? im in horrible pain all day with the bloating.
I would like to add this has given me bad anxiety.
I have a daughter with Sclerosing Mesenteritis, diagnosed in 2008 at age 14, and a pretty aggressive form of it unfortunately. We have a pretty amazing support group that we started with 57 members in it to date last year. If anyone with Sclerosing Mesenteritis or Mesenteric Panniculitis wish to join or find out more information about it, please respond or email me. It's a wonderfully based support, sharing, all forms of SM and MP are discussed and shared, it's a private group so won't post it here, but rather, contact me and I'll get you to where you need to go! We talk, share, newbies are greatly welcomed with love and open arms, great files and information, meds discussed, treatments discussed, and also creating a state wide database as to what docs will treat SM in the states we're all located in. My kiddo has had 17 abdominal surg with this dreaded disease and she is inpatient frequently, an ostomy now as well as there are others on our group as well, and again TPN dependent, as well as some others on our site are as well, some aggressive forms, some fatal, some mild, and some in the middle of this disease. We'd love to have you!
I have been recently diagnosed with mesenteric pinniculitis. Fortunately, symptoms are mild. Are there any groups on this condition?