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Digestive (Gastrointestinal) Problems

This group is for people interested in Digestive (Gastrointestinal) Problems. Join the discussion! Post your question, share your story, or just say hello to the rest of the group via the "What would you like to say?" box below. You can also view ongoing discussions by selecting the "Search Discussions" tab or find other helpful links under "Resources."

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Dan (@rdfrazier) posted in Digestive (Gastrointestinal) Problems · Fri, Aug 29 11:01am · View  

Have you had experience with long-term hiccups? Looking for cure for this 13 months problem. Have tried all home remedies and used several muscle relaxers and nothing works.

Margaret Shepard (@margieshepard) responded:

Hi, @Dan. Here's information about treatments for hiccups that you may find helpful: http://www.mayoclinic.org/diseases-conditions/hiccups/basics/treatment/con-20031471.

Posted 3 day(s) ago · View

Dan (@rdfrazier) responded:

Thanks Margaret. I've tried those muscle relaxers. They haven't stopped my hiccups and make me sleep all day. I am considering acupuncture - looking into it.

Posted 3 day(s) ago · View
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BillyMac65 (@billymac65) posted in Digestive (Gastrointestinal) Problems · Wed, Aug 27 12:43pm · View  

Mesenteric Panniculitis or Schlerosing Mesentertis (Auto-immune around small intestine)

I thought I would start a discussion for patients with Mesenteric Panniculitis. From what I know, this auto-immune disorder has three stages to it, each with differing names (Mesenteric Panniculitis, Schlerosing Mesenteritis, Retractile Mesenteritis). Typically, this appears to be in older individuals with some other under-lying problem (Lymphoma, tumor, diverticulitis).

I have an atypical presentation because I do not have an underlying cause. The doctors seem to be hoping for Lymphoma to appear so they can treat it and have the auto-immune go away. I am interested in hearing from others with this. I had this diagnosed in 2011, so I am interested in hearing more about what this is like to live with. I want to hear from others who also have an atypical presentation. Did is come back? Also interested in hearing from those with Lymphoma. How was the treatment? Did it address the auto-immune?

Pretty much, I am interested in hearing from anyone who has had this, so i can better understand it, and not feel so alone with this!!

Bill

LS4 (@lisas444) responded:

JimmyMac - I'll send you an email with the info. We have a few from here now in our group! :) Lisa

Posted 5 day(s) ago · View

LS4 (@lisas444) responded:

Hi JimmyMac - We have 58 people in there now as Erin from this Mayo site joined up with us last week and I added her to it. We are on Facebook and a SM/MP medical group. It's a closed/secret group so we can all talk and discuss freely about meds, pain, bowel issues, support, venting, laughter, etc. One of my daughter's docs is in our group as well. My kiddo is currently back in [...]

Posted 5 day(s) ago · View
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Mark (@vmc123) posted in Digestive (Gastrointestinal) Problems · Wed, Aug 27 8:27am · View  

Has anyone ever filed for social security disability because of sclerosing mesenteritis? Was diagnosed in 2010, had to leave my job of 35 years in 2012 because of this stupid disease! Any feedback would be greatly appreciated. Thanks

Noreen (@cassidy2) responded:

Hi Lisa, My boyfriend was recently diagnosed with SM. He hasn't started treatment yet. He is in such bad shape I want to find out more about applying for social security disability. How to start the process and how long it takes. Can you give me any advice? Thanks, Noreen.

Posted 6 day(s) ago · View
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LS4 (@lisas444) responded:

Noreen - I'll send you a private message on here and also the info on the support group we have! I think you could both enjoy it and a wealth of knowledge from the others! :) My kiddo is back in the hospital with this since Saturday . . . i'm bouncing between work and there. Lisa

Posted 5 day(s) ago · View
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LS4 (@lisas444) posted in Digestive (Gastrointestinal) Problems · Thu, Aug 21 5:01pm · View  

I have a daughter with Sclerosing Mesenteritis, diagnosed in 2008 at age 14, and a pretty aggressive form of it unfortunately. We have a pretty amazing support group that we started with 57 members in it to date last year. If anyone with Sclerosing Mesenteritis or Mesenteric Panniculitis wish to join or find out more information about it, please respond or email me. It's a wonderfully based support, sharing, all forms of SM and MP are discussed and shared, it's a private group so won't post it here, but rather, contact me and I'll get you to where you need to go! We talk, share, newbies are greatly welcomed with love and open arms, great files and information, meds discussed, treatments discussed, and also creating a state wide database as to what docs will treat SM in the states we're all located in. My kiddo has had 17 abdominal surg with this dreaded disease and she is inpatient frequently, an ostomy now as well as there are others on our group as well, and again TPN dependent, as well as some others on our site are as well, some aggressive forms, some fatal, some mild, and some in the middle of this disease. We'd love to have you!

LS4 (@lisas444) responded:

Erin, I sent you an email with all the info! :) Thanks! :) Lisa

Posted Thu, Aug 21 at 11:04am CDT · View
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Erin11 (@angel11) responded:

Thank you!!! :))

Posted Thu, Aug 21 at 5:01pm CDT · View
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susan easter (@mse505) posted in Digestive (Gastrointestinal) Problems · Wed, Aug 20 9:20am · View  

At times my bowels moves a lot ,

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Margaret Shepard (@margieshepard) posted in Digestive (Gastrointestinal) Problems · Fri, Aug 15 4:05pm · View  

There’s a potentially promising development in the quest to harness the microbiome. Read more about a clinic trail by doctors at the Mayo Clinic, the Miriam Hospital in Providence, and Massachusetts General Hospital in National Geographic.

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babydear (@ilenen) posted in Digestive (Gastrointestinal) Problems · Fri, Aug 8 2:07pm · View  

i was diagnosed with hiatial hernia 4 yrs ago Have been on [...]

i was diagnosed with hiatial hernia 4 yrs ago Have been on several me dine including aciphex. It helps but not completely. Should i consider surgery?

Margaret Shepard (@margieshepard) responded:

Hi @babydear. Here's information on treatments for a hiatal hernia, including information on surgery: http://www.mayoclinic.org/diseases-conditions/hiatal-hernia/basics/treatment/con-20030640.

Posted Fri, Aug 8 at 2:07pm CDT · View
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Margaret Shepard (@margieshepard) posted in Digestive (Gastrointestinal) Problems · Thu, Jul 31 2:44pm · View  

There's a complex ecosystem deep inside your gut, home to trillions of bacteria armed with the power to help – or harm – you. “We are coming to terms with the fact that gut bacteria form an additional, really important factor when we think about how people get disease and how treatment affects them,” said Dr. Purna Kashyap, associate program director of the Mayo Clinic’s Microbiome Program.

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I have a daughter with Sclerosing Mesenteritis, diagnosed in 2008 at age [...]

3 replies · Last response: Thu, Jul 31 at 10:01am CDT by LS4

At times my bowels moves a lot ,

0 replies · Last response: Wed, Aug 20 at 9:20am CDT by susan easter

I have an inguinal hernia that has been getting larger in size [...]

1 replies · Last response: Wed, Jul 2 at 9:11pm CDT by Chgorich

any info on cirrosis

3 replies · Last response: Sun, Jun 22 at 5:58pm CDT by winbrent

cirrhosis liver Liver Disease

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