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Digestive (Gastrointestinal) Problems

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Abulawi A. Anas (@abulawiaanas) posted in Digestive (Gastrointestinal) Problems · Fri, Feb 20 2:11am · View  

Hello, My cousin was diagnosed: No visualization of the left kidney. No [...]

Hello, My cousin was diagnosed:
No visualization of the left kidney.
No spleen, spleen can measured 11cm.
Elevated Amylase, Normal Lipase tests.
What is the diagnosis? Pancreatitis??
What have we to do? what is the next?

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shimmerpixie (@shimmerpixie) posted in Digestive (Gastrointestinal) Problems · Tue, Feb 10 5:49pm · View  

PLEASE read- mild gastroparesis with severe symptoms!

I was diagnosed with IBS when I was 18. I'm now 30. Early in 2011, I saw a new GI doc for unexplained feelings of fullness after eating a very small amount of food, nausea and vomiting and severe pain- all revolving around eating. He ordered a gastric emptying studying and told me I had "mild delayed emptying," which he classified as "mild gastroparesis" on my chart. He gave me Zofran 4 mg to take as needed and hyosciamine for stomach spasms. At the beginning of this year, lost 15 pounds in 2 months due to the worsening of these symptoms. I've had many sleepless nights with a horribly painful distended stomach- last night being one of the worst- and I'm on 3 nausea medications- tigin, emend and marinol- and heavy doses of all 3. I was in the hospital in February for 2 weeks with an NG tube and sent home with the medications I mentioned. I was severely dehydrated when admitted, as I'm not always able to tolerate liquids either. My GI doc requested a psych consult and I was grilled by a psychiatrist and his nurse as soon as I had a bed and fluids had been started. The outcome of this was that I did not need additional psychological intervention. (I see a therapist every 2 weeks b/c of this and other chronic pain I deal with- Fibro and osteoarthritis). So here is where I'm at: I was supposed to get in with a doctor who has access to a trial drug, but I was denied access to the program because my scan only shows mild delayed emptying. Yet my symptoms are of someone with a very severe form of it. The psychiatrist determined it's not psychological. So what am I supposed to do?? The only reason I'm gaining weight is due to the marinol, which increases my appetite but then I have to deal with the pain and nausea of eating. I don't vomit as much, because of the drugs, but I still feel nauseated after eating (even on an full liquid diet). I've kept food diaries for years and tried everything. I tried gluten-free. I eliminated "toxic" chemicals (those found in diet pop), caffeine- you name it, I've tried it BEFORE this took over my llfe in January and I'm continuing to eat as tolerated but I'm in hell. Does anyone else have a gastric emptying test that shows mild delay, yet you have severe symptoms? If so, I would love to hear from you. I hate the marinol b/c it doesn't help much with the nausea and makes me want to eat, after which I feel horrible. Please please tell me there is someone like me out there, and that help is available. Any and all replies are appreciated.
P.S. I was in the ER last twice last week due to dehydration and pain that is unbelievable and off the charts. I don't understand :(

Anonymous-c9130af4 responded:

ive had gp for about 4 years now, ive been on zofran reglan hyoscimine belladonna donnatal pantaprazole and other medications i cant think of right now. i have yet to find a medicine that actually makes my nausea tolerable so i kept researching and read that marijuana can help subside the nausea; i know theres various opinions on the medical use of thc but i decided to try it and its been working better then [...]

Posted May 19, 2013 · View

Morgan Buckner (@mobuckner7192) responded:

Hey! OMG I have a mild delay too! My first emptying test said 59% emptied in 2 hours and at 4 hours I had 23% left. My second 4 hour was 64% emptied in 2 hours and 9% at 4 hours. It's always slow at 4 hours as you can see. That's usually when I get the most nausea too is hours after eating. What was your test result? My symptoms were so severe that [...]

Posted Tue, Feb 10 at 5:49pm CST · View
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BillyMac65 (@billymac65) posted in Digestive (Gastrointestinal) Problems · Sat, Feb 7 3:54am · View  

Mesenteric Panniculitis or Schlerosing Mesentertis (Auto-immune around small intestine)

I thought I would start a discussion for patients with Mesenteric Panniculitis. From what I know, this auto-immune disorder has three stages to it, each with differing names (Mesenteric Panniculitis, Schlerosing Mesenteritis, Retractile Mesenteritis). Typically, this appears to be in older individuals with some other under-lying problem (Lymphoma, tumor, diverticulitis).

I have an atypical presentation because I do not have an underlying cause. The doctors seem to be hoping for Lymphoma to appear so they can treat it and have the auto-immune go away. I am interested in hearing from others with this. I had this diagnosed in 2011, so I am interested in hearing more about what this is like to live with. I want to hear from others who also have an atypical presentation. Did is come back? Also interested in hearing from those with Lymphoma. How was the treatment? Did it address the auto-immune?

Pretty much, I am interested in hearing from anyone who has had this, so i can better understand it, and not feel so alone with this!!


LS4 (@lisas444) responded:

hi billy. i think everyone here is in our group :)  wed love to have you if you like. I laugh that mayo would tell you that as my kiddo was 14 at diagnosis in 2008 and they know all about her, plus the other couple of kids. Our group even has a 17 month old diagnosed on up to 70 year olds and many in 30-40's ...  Feel free to email me if you [...]

Posted Fri, Feb 6 at 11:20pm CST · View

Peggyanne (@peggyanned) responded:

I am interested in joining the group. I have been sick for 3 months with pain and nausea. Mesenteric panniculitis showed up on. cT scan I just had....I have not had a follow up with a GI doctor yet...not sure where to go.

Posted Sat, Feb 7 at 3:54am CST · View
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bruce36441 (@bruce36441) posted in Digestive (Gastrointestinal) Problems · Mon, Feb 2 9:45pm · View  

If anyone can help here is my story; August 2013 I felt a need to go to the bathroom (bowel movement) , but then I did not need to after all. from that point on I have lived with that "urge" to go everyday, and a lot of times it is false. I have had a colonoscopy, CT scan, rectal exam, marker test, all to no avail. already went thru 2 gastro doctors. none has ever heard of such It really bothers me when I travel and lay down for bed at night.
Looking for any help I can get. Thanks

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Kolitis (@kolitis) posted in Digestive (Gastrointestinal) Problems · Sun, Feb 1 10:40pm · View  

I need help taming my Ulcerative Colitis

Hello everyone, so here's my background:

> male, 20 years old
> diagnosed with UC on July 12th, 2011
> I decide on homeopathic treatment, combined with specific carb diet
> still bleeding, bloating, and cramping after 2 months of this regimen
> had a few very bad days, characterized by severe urgency, pain, and very little sleep
> try asacol (oral mesalamine) 800mg/day, does not help
> need to use the bathroom at least 12 times per day, sometimes within 2 minutes of each other
> give in to Dr's suggestion, start Prednisone 40mg/day
> bleeding gone in 2 weeks, cramping, bloating significantly decreased, sleeping increased
> also I began doing butyrate acid and mesalamine enemas (not fun)
> usually I'd aim for 2 per day (one of each type) but sometimes I'd only do one
> kept up with enemas, tapered off Prednisone after about 2 months (40mg, 30mg, 20mg, 15mg, 10mg, 5mg, 2mg, 1mg, 0mg, one week at each dose)
> Start Lialda (oral mesalamine) 2.4g/day to aid in tapering of Prednisone.
> November begins, and I have not seen blood in a very long time. I still get up in the night, sometimes many times, sometimes only once. Urgency occurs rarely in the daytime, and always occurs at night, specifically when I try to lay down.
> Today, the only remaining symptom is my stool consistency. I have not achieved a solid stool yet. The best my stool ever looks is semi-solid, formed little pieces. Like a normal poop but miniature-sized, and more pieces.
> I am still on Lialda, and I still do at least one enema per day. I take fish oil, and digestive enzymes as well. As far as diet, I still do not eat any dairy, yeast, refined sugars, raw fruit or vegetables, red meat, and I only drink water and coconut water.

Stool consistency usually has to do with re-uptake of fluids, so I ask you, what could be going wrong inside my gut that is still making my bowel movements so watery and soft.

How, in God's name, do I get my stools to become more formed? I feel that I've done everything to get back into remission. Any help you may have would be greatly appreciated :)

susieqpants (@susieqpants) responded:

I haven't been able to drink alcohol in over years due to my UC...its like having food poisoning for days on end if I even have a tiniest sip...It is fun however, to get pity faces as people assume I am an alcoholic because I don't drink

Posted Jul 23, 2012 · View

Bolo49 (@bolo49) responded:

Hello, I'm sorry to hear you are suffering so and at such a young age. I've had UC for 18 years now. It's controlled but I rarely have solid stools and still have about 5 BM per day. I've recently cut out meat and that seems to make a huge difference. Try sleeping on your back or sleep propped up as it will not bother the UC as much. I should be on Asacol but [...]

Posted Jul 24, 2012 · View
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Gemini-1 (@gemini1) posted in Digestive (Gastrointestinal) Problems · Sun, Feb 1 10:39pm · View  

Help! Proctocolectomy takedown surgery - diet recommendations?

I had the takedown surgery 2 months ago, and have been struggling with finding food that works for my system. I'm also a vegetarian. I was only diagnosed with Ulcerative Colitis 10 months ago, and had emergency proctocolectomy surgery within days of the diagnosis. I had the j-pouch surgery a few months later, and the reversal surgery two months ago. Bcause of this short timeframe, I still havent identified a diet that will work well with my system. Any suggestions?

gfrancis (@gfrancis) responded:


Edited: 02/01/2015 @ 10:39pm

Posted Mar 20, 2012 · View
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Kathy Zendner (@kathyzendner) posted in Digestive (Gastrointestinal) Problems · Tue, Jan 20 12:05am · View  

I am a new member. I always research Mayo Clinic for medical information. I was diagnosed with Ideopathic Gastroparesis 11/17/14 I am going downhill since diagnosis. I have lost 35 lbs. since mid Oct. 2014. I was barely tolerating any typical "Flu" clear liquid diet when first hospitalized. I have been in the hospital 4 times. I had a positive Gastric Emptying study on 12/14/14. My Gastroparesis diet has decreased from stage 1 diet to only tolerating Chamomile tea and occasional Jello, and plain Cream of Wheat. I was drinking 2-3 Boost Breezes per day (Peach only) for calories & minimal vitamins, 9 gms. protein. Now even that is causing me worsening nausea & diarrhea. I am a 61 year old Caucasian female, no diabetes. I am worried & scared. I am supposed to see a "GI Specialist" at my local VA hospital in 2 days. My immune system, endocrine system ( I am Hypothyroid), and Urinary tract (I also have Cystitis) cognitive function, and vision are all being compromised, as well as ongoing dehydration, malnutrition & electrolyte imbalances. I don't want to be hospitalized again. Last time was horrendous ! I came home with a positive Staph infection in my bladder. My Urologist doesn't know what to do about my cystitis as I can't tolerate any further antibiotics. Most doctors don't even know about Gastroparesis! I am beyond exhaustion, sleeping very erratic. I get up every day, clean house, cook, and continue to enjoy my pets, my grandchildren, and bird watching in spite of my ill health. I am homebound due this illness. Any thoughts, ideas, possible treatments, or info would be appreciated. Thank you in advance, Kathy

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hepster (@smaug48) posted in Digestive (Gastrointestinal) Problems · Sun, Jan 18 10:51am · View  

Does anyone have information about the Mayo Clinic treating people for Post Interferon Syndrome? I had 92 weeks of interferon for Hepatitis C (which didn't work) 2008-2009 and now feel much worse than I did before starting treatment. Any information would be appreciated, thanks.

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PLEASE read- mild gastroparesis with severe symptoms!

18 replies · Last response: Tue, Feb 10 at 5:49pm CST by Morgan Buckner

If anyone can help here is my story; August 2013 I felt [...]

0 replies · Last response: Mon, Feb 2 at 9:45pm CST by bruce36441

I am a new member. I always research Mayo Clinic for medical [...]

0 replies · Last response: Tue, Jan 20 at 12:05am CST by Kathy Zendner


1 replies · Last response: Wed, Jan 14 at 2:19pm CST by Eric Esplana

3 Hi I want to say that I have gastritis and I [...]

0 replies · Last response: Dec 13, 2014 by ferrera nid

Do you have a group on Eosinaphallic Eosphagatis?

0 replies · Last response: Dec 11, 2014 by Tudormom

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