Digestive (Gastrointestinal) Problems
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Is anyone taking Remicade (especially for ulcerative colitis)?
What doses and how frequently?
How long, how many years have you taken it?
Is the rejuvinative affect waring off?
My father is 73 years old and has type 2 diabetes. He underwent GJ (gastro-jejunostomy i.e. gastric bypass surgery for a peptic/duodenal ulcer ) about 25 years ago. He feels completely washed out and totally weak every time he empties his bowels or a full bladder. He also suffers from hyper-salivation and noone has been able to identify the reason or provide relief. Any thoughts or help in dealing with this are highly appreciated. Thank you.
I have just had a scope procedure done and am frustrated as it came back normal and yet I am not normal. For over a year I've had horrible indigestion, excessive painful gas, constant stomach and chest pain, often nausea and chills if I overeat. I have not had a gastric bypass but I feel like I have. I tried Nexium daily for months and it did very little to nothing. Zantac, Omeprazole, Tums, complete change in diet.. none of these have helped. The pain doesn't come and go it is all the time but worse after eating. It is also worse if I skip eating. My diet cannot get any more correct for acid issues and I don't know what else to do. I'm also now broke after paying for this $1100 procedure that turned up zilch. I am in my early 30s, a little overweight... about 175 last I checked and 5'6. I am very active and do not sit all day at work. I do have a ton of stress, but I think I manage it pretty well. I don't exercise but I did before all this started and I want to, just can't work out when in pain. This is why I've become overweight this year. I am a non-smoker, and my only medical issues have been occasional abnormal pap smears/ovarian cyst issues and fibromyalgia. Only meds I take are birth control. Someone please help as I don't know what else to do now. Dr. is prescribing more Nexium, but I've been down that road.
I thought I would start a discussion for patients with Mesenteric Panniculitis. From what I know, this auto-immune disorder has three stages to it, each with differing names (Mesenteric Panniculitis, Schlerosing Mesenteritis, Retractile Mesenteritis). Typically, this appears to be in older individuals with some other under-lying problem (Lymphoma, tumor, diverticulitis).
I have an atypical presentation because I do not have an underlying cause. The doctors seem to be hoping for Lymphoma to appear so they can treat it and have the auto-immune go away. I am interested in hearing from others with this. I had this diagnosed in 2011, so I am interested in hearing more about what this is like to live with. I want to hear from others who also have an atypical presentation. Did is come back? Also interested in hearing from those with Lymphoma. How was the treatment? Did it address the auto-immune?
Pretty much, I am interested in hearing from anyone who has had this, so i can better understand it, and not feel so alone with this!!
Has anyone ever filed for social security disability because of sclerosing mesenteritis? Was diagnosed in 2010, had to leave my job of 35 years in 2012 because of this stupid disease! Any feedback would be greatly appreciated. Thanks
I have a daughter with Sclerosing Mesenteritis, diagnosed in 2008 at age 14, and a pretty aggressive form of it unfortunately. We have a pretty amazing support group that we started with 57 members in it to date last year. If anyone with Sclerosing Mesenteritis or Mesenteric Panniculitis wish to join or find out more information about it, please respond or email me. It's a wonderfully based support, sharing, all forms of SM and MP are discussed and shared, it's a private group so won't post it here, but rather, contact me and I'll get you to where you need to go! We talk, share, newbies are greatly welcomed with love and open arms, great files and information, meds discussed, treatments discussed, and also creating a state wide database as to what docs will treat SM in the states we're all located in. My kiddo has had 17 abdominal surg with this dreaded disease and she is inpatient frequently, an ostomy now as well as there are others on our group as well, and again TPN dependent, as well as some others on our site are as well, some aggressive forms, some fatal, some mild, and some in the middle of this disease. We'd love to have you!
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