Digestive (Gastrointestinal) Problems
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I thought I would start a discussion for patients with Mesenteric Panniculitis. From what I know, this auto-immune disorder has three stages to it, each with differing names (Mesenteric Panniculitis, Schlerosing Mesenteritis, Retractile Mesenteritis). Typically, this appears to be in older individuals with some other under-lying problem (Lymphoma, tumor, diverticulitis).
I have an atypical presentation because I do not have an underlying cause. The doctors seem to be hoping for Lymphoma to appear so they can treat it and have the auto-immune go away. I am interested in hearing from others with this. I had this diagnosed in 2011, so I am interested in hearing more about what this is like to live with. I want to hear from others who also have an atypical presentation. Did is come back? Also interested in hearing from those with Lymphoma. How was the treatment? Did it address the auto-immune?
Pretty much, I am interested in hearing from anyone who has had this, so i can better understand it, and not feel so alone with this!!
About 1 percent of the U.S. population suffers from celiac disease, but many more chose to avoid gluten in their daily diets. Why? Dr. Joseph Murray explains some of the in and outs of a gluten-free lifestyle.
Hi, I,m new to site, so thanks for having me! I have Crohn's diseas since 25 yrs age. Am now 66. No real bad problems with it as such in my older years. food,sensitivity to high fibre which creates spasms and discomfort. But need to ask about possible connection with something I,ve developed,4 years ago e, Vertigo/balance problems. it would seem to be a kind of Vestibular problem and have had various ,treatments' that basically involve VRT exercises (drugs either did not work or made worse), but these do not help at all. I have noticed that when my gut is playing up, it exacerbates my vertigo symptoms and when I asked my Gastro consultant here in London at Barts why this is he said It is probably due to the central nervous system, as in it is all connected.,,He doesn,t seem to be very au fait with the vestibular side of things though, so I wondered if anyone could shine a light on this connection as I am desperate for an answer to this problem which has quite frankly messed up my life as it also creates extreme exhaustion. many thanks..
I was just told that I have an open bile duct. I have an appt. my physician next week to discuss the next step in treatment. Does this mean I am going to have to have my gall bladder removed??? What are my options here?
Hi everyone. My name is Anna and I am.on here trying to find anyone with similar symptoms/situation as my fiance. He is a 27 y/o white male weighing 150lbs. He has had 2 abdominal surgeries in the past 2 years.
Tests/xray/ct scan/blood work, etc ALWAYS come back negative or they do not show anything.
His symptoms started as:
Constant pain in his abdomen/bread basket, constant nausea and daily committing for a couple of hours.
The first surgery was an emergency. He has scar tissue all throughout his GI track. The had to 'clean' his entire GI track. He was symptom free for about 3 months when it all started again. He was in constant pain and vomiting constantly. 6 months after his first surgery, he had another to remove adhesions.
After that surgery, his symptoms did no improve and his kidneys began to fail. No doctor or hospital would biopsy his kidneys to see why they failed and he began emergency dialysis in August 2014.
Now here we are stuck in the same boat.
His BP will go from the high 200's to normal by just sitting up or standing.
He is a type 1 diabetic and when he is not having a flair up due to gastritis (his diagnoses) his sugars are controlled.
If anyone has been through this or is going through this, please reach out. I'm terrifies that I will lose him and I don't know where to turn to get him the help he needs.
I have a daughter with Sclerosing Mesenteritis, diagnosed in 2008 at age 14, and a pretty aggressive form of it unfortunately. We have a pretty amazing support group that we started with 57 members in it to date last year. If anyone with Sclerosing Mesenteritis or Mesenteric Panniculitis wish to join or find out more information about it, please respond or email me. It's a wonderfully based support, sharing, all forms of SM and MP are discussed and shared, it's a private group so won't post it here, but rather, contact me and I'll get you to where you need to go! We talk, share, newbies are greatly welcomed with love and open arms, great files and information, meds discussed, treatments discussed, and also creating a state wide database as to what docs will treat SM in the states we're all located in. My kiddo has had 17 abdominal surg with this dreaded disease and she is inpatient frequently, an ostomy now as well as there are others on our group as well, and again TPN dependent, as well as some others on our site are as well, some aggressive forms, some fatal, some mild, and some in the middle of this disease. We'd love to have you!
Hello! My husband is scheduled for gallbladder surgery for Monday. It is highly inflamed and working at 9%. He had a hida scan and an endoscopy done. They did a biopsy to see if there were any ulcers and everything from that came back good. My husband has been getting pains in his back and under his ribs. He has gotten these before but they subsided, not this time. He has no appetite and is very full after small meals. No energy is another complaint. He has a stressful job and they say stress can bring on the inflammation as well. My question is should he put the surgery off until fall if he tries to live a less stressful lifestyle and also manages a healthy diet or will he never be able to gain the functioning of his gallbladder back? Thanks!
I have severe abdominal pain after a bowel movement. The pain can last for hours. I have been taking Tramadol. I aways use a heating pad. Sometimes I can get relief, but not always. Once the pain is gone I feel good, until the next bowel movement. I am in kidney rejection after a 10 year transplant. Have so many medical issues due to kidney. The Dr says this is not kidney related. Most days are unbearable and I hardly leave my home. Your suggestions are appreciated.