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Digestive (Gastrointestinal) Problems

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FrankKirschen (@frankkirsch) posted in Digestive (Gastrointestinal) Problems · Sat, Sep 20 12:06pm · View  

Is anyone taking Remicade (especially for ulcerative colitis)?

What doses and how frequently?

How long, how many years have you taken it?

Is the rejuvinative affect waring off?

Jason Pratt (@jasonpratt) responded:

Hello Frank. Unfortunately, we cannot diagnose conditions, provide second opinions or make specific treatment recommendations through this correspondence. If you would like to seek help from Mayo Clinic, please call one of our appointment offices (Arizona: 800-446-2279 Florida: 904-953-0853 Minnesota: 507-538-3270). However, here is some information on ulcerative colitis that may be helpful to you: http://www.mayoclinic.org/diseases-conditions/ulcerative-colitis/basics/definition/con-20043763

Posted 2 day(s) ago · View
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aster (@aster) posted in Digestive (Gastrointestinal) Problems · Tue, Sep 16 12:35am · View  

My father is 73 years old and has type 2 diabetes. He underwent GJ (gastro-jejunostomy i.e. gastric bypass surgery for a peptic/duodenal ulcer ) about 25 years ago. He feels completely washed out and totally weak every time he empties his bowels or a full bladder. He also suffers from hyper-salivation and noone has been able to identify the reason or provide relief. Any thoughts or help in dealing with this are highly appreciated. Thank you.

Margaret Shepard (@margieshepard) responded:

Hi @aster. I'm sorry to hear about your father. Here's some information about lifestyle and home remedies for type 2 diabetes that may be helpful: http://www.mayoclinic.org/diseases-conditions/type-2-diabetes/basics/lifestyle-home-remedies/con-20031902. Does anyone else have thoughts or advice?

Posted Mon, Sep 15 at 2:52pm CDT · View

aster (@aster) responded:

Thanks @Margaret Shepard. My father is meticulous with lifestyle and condition management. These symptoms are in spite of taking all necessary measures. This is why we are baffled and concerned. Are there doctors on this forum that can be tagged to this question? Thank you.

Posted 6 day(s) ago · View
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ouchtummy8 (@ouchtummy8) posted in Digestive (Gastrointestinal) Problems · Mon, Sep 15 2:57pm · View  

I have just had a scope procedure done and am frustrated as it came back normal and yet I am not normal. For over a year I've had horrible indigestion, excessive painful gas, constant stomach and chest pain, often nausea and chills if I overeat. I have not had a gastric bypass but I feel like I have. I tried Nexium daily for months and it did very little to nothing. Zantac, Omeprazole, Tums, complete change in diet.. none of these have helped. The pain doesn't come and go it is all the time but worse after eating. It is also worse if I skip eating. My diet cannot get any more correct for acid issues and I don't know what else to do. I'm also now broke after paying for this $1100 procedure that turned up zilch. I am in my early 30s, a little overweight... about 175 last I checked and 5'6. I am very active and do not sit all day at work. I do have a ton of stress, but I think I manage it pretty well. I don't exercise but I did before all this started and I want to, just can't work out when in pain. This is why I've become overweight this year. I am a non-smoker, and my only medical issues have been occasional abnormal pap smears/ovarian cyst issues and fibromyalgia. Only meds I take are birth control. Someone please help as I don't know what else to do now. Dr. is prescribing more Nexium, but I've been down that road.

Margaret Shepard (@margieshepard) responded:

Hi, @ouchtummy8. I'm sorry to hear about your pain. Here's a link to information about lifestyle and home remedies for indigestion that may be helpful http://www.mayoclinic.org/diseases-conditions/indigestion/basics/lifestyle-home-remedies/con-20034440. Does anyone else have advice?

Posted Mon, Sep 15 at 2:57pm CDT · View
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Dan (@rdfrazier) posted in Digestive (Gastrointestinal) Problems · Fri, Aug 29 11:01am · View  

Have you had experience with long-term hiccups? Looking for cure for this 13 months problem. Have tried all home remedies and used several muscle relaxers and nothing works.

Margaret Shepard (@margieshepard) responded:

Hi, @Dan. Here's information about treatments for hiccups that you may find helpful: http://www.mayoclinic.org/diseases-conditions/hiccups/basics/treatment/con-20031471.

Posted Fri, Aug 29 at 8:16am CDT · View

Dan (@rdfrazier) responded:

Thanks Margaret. I've tried those muscle relaxers. They haven't stopped my hiccups and make me sleep all day. I am considering acupuncture - looking into it.

Posted Fri, Aug 29 at 11:01am CDT · View
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BillyMac65 (@billymac65) posted in Digestive (Gastrointestinal) Problems · Wed, Aug 27 12:43pm · View  

Mesenteric Panniculitis or Schlerosing Mesentertis (Auto-immune around small intestine)

I thought I would start a discussion for patients with Mesenteric Panniculitis. From what I know, this auto-immune disorder has three stages to it, each with differing names (Mesenteric Panniculitis, Schlerosing Mesenteritis, Retractile Mesenteritis). Typically, this appears to be in older individuals with some other under-lying problem (Lymphoma, tumor, diverticulitis).

I have an atypical presentation because I do not have an underlying cause. The doctors seem to be hoping for Lymphoma to appear so they can treat it and have the auto-immune go away. I am interested in hearing from others with this. I had this diagnosed in 2011, so I am interested in hearing more about what this is like to live with. I want to hear from others who also have an atypical presentation. Did is come back? Also interested in hearing from those with Lymphoma. How was the treatment? Did it address the auto-immune?

Pretty much, I am interested in hearing from anyone who has had this, so i can better understand it, and not feel so alone with this!!

Bill

LS4 (@lisas444) responded:

JimmyMac - I'll send you an email with the info. We have a few from here now in our group! :) Lisa

Posted Wed, Aug 27 at 12:41pm CDT · View

LS4 (@lisas444) responded:

Hi JimmyMac - We have 58 people in there now as Erin from this Mayo site joined up with us last week and I added her to it. We are on Facebook and a SM/MP medical group. It's a closed/secret group so we can all talk and discuss freely about meds, pain, bowel issues, support, venting, laughter, etc. One of my daughter's docs is in our group as well. My kiddo is currently back in [...]

Posted Wed, Aug 27 at 12:43pm CDT · View
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Mark (@vmc123) posted in Digestive (Gastrointestinal) Problems · Wed, Aug 27 8:27am · View  

Has anyone ever filed for social security disability because of sclerosing mesenteritis? Was diagnosed in 2010, had to leave my job of 35 years in 2012 because of this stupid disease! Any feedback would be greatly appreciated. Thanks

Noreen (@cassidy2) responded:

Hi Lisa, My boyfriend was recently diagnosed with SM. He hasn't started treatment yet. He is in such bad shape I want to find out more about applying for social security disability. How to start the process and how long it takes. Can you give me any advice? Thanks, Noreen.

Posted Tue, Aug 26 at 10:09pm CDT · View
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LS4 (@lisas444) responded:

Noreen - I'll send you a private message on here and also the info on the support group we have! I think you could both enjoy it and a wealth of knowledge from the others! :) My kiddo is back in the hospital with this since Saturday . . . i'm bouncing between work and there. Lisa

Posted Wed, Aug 27 at 8:27am CDT · View
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LS4 (@lisas444) posted in Digestive (Gastrointestinal) Problems · Thu, Aug 21 5:01pm · View  

I have a daughter with Sclerosing Mesenteritis, diagnosed in 2008 at age 14, and a pretty aggressive form of it unfortunately. We have a pretty amazing support group that we started with 57 members in it to date last year. If anyone with Sclerosing Mesenteritis or Mesenteric Panniculitis wish to join or find out more information about it, please respond or email me. It's a wonderfully based support, sharing, all forms of SM and MP are discussed and shared, it's a private group so won't post it here, but rather, contact me and I'll get you to where you need to go! We talk, share, newbies are greatly welcomed with love and open arms, great files and information, meds discussed, treatments discussed, and also creating a state wide database as to what docs will treat SM in the states we're all located in. My kiddo has had 17 abdominal surg with this dreaded disease and she is inpatient frequently, an ostomy now as well as there are others on our group as well, and again TPN dependent, as well as some others on our site are as well, some aggressive forms, some fatal, some mild, and some in the middle of this disease. We'd love to have you!

LS4 (@lisas444) responded:

Erin, I sent you an email with all the info! :) Thanks! :) Lisa

Posted Thu, Aug 21 at 11:04am CDT · View
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Erin11 (@angel11) responded:

Thank you!!! :))

Posted Thu, Aug 21 at 5:01pm CDT · View
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susan easter (@mse505) posted in Digestive (Gastrointestinal) Problems · Wed, Aug 20 9:20am · View  

At times my bowels moves a lot ,

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I have a daughter with Sclerosing Mesenteritis, diagnosed in 2008 at age [...]

3 replies · Last response: Thu, Jul 31 at 10:01am CDT by LS4

At times my bowels moves a lot ,

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I have an inguinal hernia that has been getting larger in size [...]

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any info on cirrosis

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cirrhosis liver Liver Disease

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