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Digestive (Gastrointestinal) Problems

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susan easter (@mse505) posted in Digestive (Gastrointestinal) Problems · Wed, Aug 20 9:20am · View  

At times my bowels moves a lot ,

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Mark (@vmc123) posted in Digestive (Gastrointestinal) Problems · Recent activity · Tue, Aug 19 9:18pm · View  

Has anyone ever filed for social security disability because of sclerosing mesenteritis? Was diagnosed in 2010, had to leave my job of 35 years in 2012 because of this stupid disease! Any feedback would be greatly appreciated. Thanks

Mark (@vmc123) responded:

Hi Lisa, hope you and little mac are doing okay. Do you think the gentleman who has the order would let me have a copy?

Posted 20 hour(s) ago · View

Mark (@vmc123) responded:

Hello Dick, yes, have had 2nd and 3rd opinions plus a biopsy done. My tumor is the size of a fist and runs from my front to my back thus the pain in all areas of the abdomen.

Posted 20 hour(s) ago · View
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Margaret Shepard (@margieshepard) posted in Digestive (Gastrointestinal) Problems · Fri, Aug 15 4:05pm · View  

There’s a potentially promising development in the quest to harness the microbiome. Read more about a clinic trail by doctors at the Mayo Clinic, the Miriam Hospital in Providence, and Massachusetts General Hospital in National Geographic.

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babydear (@ilenen) posted in Digestive (Gastrointestinal) Problems · Fri, Aug 8 2:07pm · View  

i was diagnosed with hiatial hernia 4 yrs ago Have been on [...]

i was diagnosed with hiatial hernia 4 yrs ago Have been on several me dine including aciphex. It helps but not completely. Should i consider surgery?

Margaret Shepard (@margieshepard) responded:

Hi @babydear. Here's information on treatments for a hiatal hernia, including information on surgery: http://www.mayoclinic.org/diseases-conditions/hiatal-hernia/basics/treatment/con-20030640.

Posted Fri, Aug 8 at 2:07pm CDT · View
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Margaret Shepard (@margieshepard) posted in Digestive (Gastrointestinal) Problems · Thu, Jul 31 2:44pm · View  

There's a complex ecosystem deep inside your gut, home to trillions of bacteria armed with the power to help – or harm – you. “We are coming to terms with the fact that gut bacteria form an additional, really important factor when we think about how people get disease and how treatment affects them,” said Dr. Purna Kashyap, associate program director of the Mayo Clinic’s Microbiome Program.

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LS4 (@lisas444) posted in Digestive (Gastrointestinal) Problems · Thu, Jul 31 10:01am · View  

I have a daughter with Sclerosing Mesenteritis, diagnosed in 2008 at age 14, and a pretty aggressive form of it unfortunately. We have a pretty amazing support group that we started with 57 members in it to date last year. If anyone with Sclerosing Mesenteritis or Mesenteric Panniculitis wish to join or find out more information about it, please respond or email me. It's a wonderfully based support, sharing, all forms of SM and MP are discussed and shared, it's a private group so won't post it here, but rather, contact me and I'll get you to where you need to go! We talk, share, newbies are greatly welcomed with love and open arms, great files and information, meds discussed, treatments discussed, and also creating a state wide database as to what docs will treat SM in the states we're all located in. My kiddo has had 17 abdominal surg with this dreaded disease and she is inpatient frequently, an ostomy now as well as there are others on our group as well, and again TPN dependent, as well as some others on our site are as well, some aggressive forms, some fatal, some mild, and some in the middle of this disease. We'd love to have you!

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BillyMac65 (@billymac65) posted in Digestive (Gastrointestinal) Problems · Thu, Jul 31 9:53am · View  

Mesenteric Panniculitis or Schlerosing Mesentertis (Auto-immune around small intestine)

I thought I would start a discussion for patients with Mesenteric Panniculitis. From what I know, this auto-immune disorder has three stages to it, each with differing names (Mesenteric Panniculitis, Schlerosing Mesenteritis, Retractile Mesenteritis). Typically, this appears to be in older individuals with some other under-lying problem (Lymphoma, tumor, diverticulitis).

I have an atypical presentation because I do not have an underlying cause. The doctors seem to be hoping for Lymphoma to appear so they can treat it and have the auto-immune go away. I am interested in hearing from others with this. I had this diagnosed in 2011, so I am interested in hearing more about what this is like to live with. I want to hear from others who also have an atypical presentation. Did is come back? Also interested in hearing from those with Lymphoma. How was the treatment? Did it address the auto-immune?

Pretty much, I am interested in hearing from anyone who has had this, so i can better understand it, and not feel so alone with this!!

Bill

LS4 (@lisas444) responded:

Hi there, saw your posts on here about SM and MP. We have a support group with 57 members if you're interested. It's a private group to be able to share, support, receive support, doc info, meds, etc. I'm a mom with a pediatric kid with SM. If you write back I can give you the contact info if you'd like. No, it's not the yahoo group either. That site has information in files, but [...]

Posted Thu, Jul 31 at 9:51am CDT · View

LS4 (@lisas444) responded:

Hi there, I saw your posts on here about SM and MP. We have a support group with 57 members if you're interested. It's a private group to be able to share, support, receive support, doc info, meds, etc. I'm a mom with a pediatric kid with SM. Please write back I can give you the contact info if you'd like. No, it's not the yahoo group either. That site has information in files, but [...]

Posted Thu, Jul 31 at 9:53am CDT · View
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MarkM (@markmor456) posted in Digestive (Gastrointestinal) Problems · Wed, Jul 30 4:02pm · View  

Been recently diagnose with meseteric panniculitis 2 months ago been dealing with [...]

Been recently diagnose with meseteric panniculitis 2 months ago been dealing with it since Oct 2013.looking for input,
Thanks

LS4 (@lisas444) responded:

She was diagnosed in 2008 . . . age 14.

Posted Wed, Jul 30 at 4:01pm CDT · View

LS4 (@lisas444) responded:

and yes pathology was done when they had her open on the table . . . sent to 4 pathology sites with the same diagnosis. Thru Children's in OKC, St. Louis, Vanderbilt and Salt Lake . . . she's still alive . . but the outcome isn't good.

Posted Wed, Jul 30 at 4:02pm CDT · View
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At times my bowels moves a lot ,

0 replies · Last response: 8 hour(s) ago by susan easter

I have a daughter with Sclerosing Mesenteritis, diagnosed in 2008 at age [...]

0 replies · Last response: Thu, Jul 31 at 10:01am CDT by LS4

I have an inguinal hernia that has been getting larger in size [...]

1 replies · Last response: Wed, Jul 2 at 9:11pm CDT by Chgorich

any info on cirrosis

3 replies · Last response: Sun, Jun 22 at 5:58pm CDT by winbrent

cirrhosis liver Liver Disease

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