Social Media Summit Scholarship Essay – Corey Daniel King

By JoyceG Last reply at August 15, 2011 at 2:44 pm Views 1,870 Replies 39 Likes 53

JoyceG

Editor's Note: This is an entry in our Scholarship Contest for Patients and Caregivers to attend the Mayo Clinic Social Media Summit Oct. 17-21 in Rochester, Minn. See this post
http://socialmedia.mayoclinic.org/2011/07/26/...
for more details on the contest, and please cast your votes by liking or commenting on the candidates you think would be best.

Here is Corey Daniel King’s Essay:

I’m Corey King. I’m the president and chairman of the Alamo Area Parkinson’s Support Group, the South Texas chapter of the American Parkinson Disease Association. I've had many roles in my life; a son, a brother, a husband, a father, a military officer, an executive in public, private, and startup businesses, and an engineer and scientist. Recently, I discovered that I'm also a person with Parkinson's, and I've become an advocate, fundraiser, cheerleader, and supporter in the quest to ease the burden and find the cure for Parkinson's disease.

I was diagnosed at age 47, 2 years ago. My diagnosis story is somewhat typical for a young-onset patient; I spent years battling the symptoms of Parkinson's without knowing what they were, and I walked a long, crooked path with many misdiagnoses and delays before finally getting the answer that none of us with Parkinson's want to hear. There was some comfort in being able to put a name to the wide variety of seemingly unrelated medical problems that I experienced, and to finally be able to make a plan for how to combat the disease, but like other young-onset Parkinson's patients I would've preferred to hear almost anything else.

Since then, I've become involved in leading our local support organization. We provide support groups in San Antonio and South Texas, and we raise funds to support medical research and provide educational symposiums, conferences, and outreach activities. For much of the past 28 years, I have been a leader and executive in the information technology and information security world, and I have a deep regard and personal fondness for information systems and social media technologies. We at AAPSG apply those technologies to extend our reach as we communicate to other PWP's, caregivers, and supporters.

In the last 6 months, since I've assumed leadership of AAPSG, we have created a new Ning.com-based website, and we've linked our organizational Facebook page, my personal Facebook page, my Twitter feed, and my blog site at http://cdkingcrookedpath.wordpress.com with our new website. We've been successful in making all of these technologies work together, and we use them to communicate more easily with our members, to reach out to potential donors and supporters, and to educate the community at large about Parkinson's disease. Our information technologies are a force multiplier for us–we use social media and other traditional media such as newsletters, radio advertisements, and print media, to reach much farther and contact more people then would otherwise be possible.

It's been a busy 6 months. In that time, in addition to working with AAPSG to create our social media systems, I attended the Parkinson’s Action Network conference in Washington, D.C. and met with 6 Texas representatives and senators and was able to influence Sen. Kay Bailey Hutchison to join the caucus supporting Parkinson's disease education and research in the United States Congress. I've also been interviewed on two local radio shows and have been featured in a newspaper article on deep brain stimulation in the San Antonio Express-News. I've begun writing The Crooked Path, a well-received blog from a patient's perspective on the issues that Parkinson's patients and caregivers face. And, I also have had deep brain stimulation surgery and have begun the process of adjusting and tuning the stimulator.

These activities are valuable as methods for reaching out as broadly as possible to improve the lives of people with Parkinson's and their families and care partners. I am passionately dedicated to this cause, and social media technologies are some of the most effective tools at my disposal to pursue my goals. At the Mayo Clinic conference on social media, I hope to learn about new social media techniques and share my own experiences with others to benefit the Parkinson's community.

I have found that our biggest challenge, as is usually true, is communication. Social media helps us to improve and expand our communication, reach more people who need what we have to offer, and create an awareness among benefactors and the broader population about the needs and challenges of those with Parkinson's disease. I look forward to attending the conference, sharing my own experiences, and learning from my colleagues about how to do this important job more effectively.

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Replies (39 replies)

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  • Jim Hokanson
    Jim Hokanson August 23, 2011 at 9:15 am   

    I've known Corey for just a short time. He's impressed me with his intellect and his ability to make the most out of his 'gift that keeps on giving'.

  • Gene
    Gene August 19, 2011 at 9:18 am   

    Since my wife has Hintingtons Disease I understand and appreciate the value of gthe support that Corey brings to the entire Parkinsons community. It's great to have a very effective advocate on your side - and he is for sure one effective advocate! And also good to have somebody like Corey providing good ideas on how to "adjust" to life with this kind of challenge. He will be a blessing to the "family"

  • connectedPatient
    conn­ecte­dPat­ient August 19, 2011 at 7:12 am   

    I hope the Mayo Clinic chose to support my colleague Deb Boyce with a scholarship for her brave and valuable work as a patient advocate who is paving the way for future cancer patients obtaining critical treatment information through the use of social media!

  • ckingaapsg
    ckin­gaap­sg August 19, 2011 at 8:36 am   

    Deb seems like a wonderful advocate and truly deserving candidate. good luck to us all!

  • kelliparker
    kell­ipar­ker August 18, 2011 at 11:29 pm   

    Yet another of Corey's roles is being my uncle. Our family is so proud of his accomplishments and there is no end to the drive and determination he has!

  • ckingaapsg
    ckin­gaap­sg August 18, 2011 at 11:04 pm   

    I've always counted myself very fortunate; and never more so than tonight. I'm touched beyond words (and that's saying a lot for me) by this outpouring of encouragement and support. No matter what may happen in the future, I'll always be a rich man––you, my family, friends, and colleagues, are my greatest treasure. Thank you all.

    Fingers crossed that I will be Minnesota-bound in October!

  • lhhcooper
    lhhcooper August 18, 2011 at 10:38 pm   

    A wonderful essay! Corey King is an inspiring individual. We need more Coreys in the world.

  • Anonymous
    Anonymous August 18, 2011 at 10:49 am   

    Great essay from an inspiring guy who has a heart for those on a crooked path. I vote for you to receive the scholarship.

  • kent doster
    kent doster August 18, 2011 at 9:05 am   

    I have known Corey for 17 years. We have worked together, travelled together, enjoyed meals together and just been friends. Corey is one of the most positive people I have ever known and dedicated to and passionate about the causes he supports. In the time I've known Corey, I've never known him to fail in anything he attempts. I have sollowed his "crooked path" with much interest, both meeting with Corey regularly and following his blog. I fully support his pursuit of this scholarship and am confident he will be a positive contributor to the summit.

  • aaarrrttt
    aaarrrttt August 18, 2011 at 8:54 am   

    Corey is always positive, leads strongly from his heart. He's on my short list of real heroes. I always read his postings as soon as I hear about them. I find them inspiring and warm, and his ability to use humor to illuminate his (and all of our) struggles makes them seem more bearable. I will expect that Corey will become well known in the world of PD because his dedication and strength will simply make him stand. Strongly recommend you make use of this valuable person as a resource for all.

  • SMitchem
    SMitchem August 18, 2011 at 8:45 am   

    Having worked with Corey for the past 5 years (as well as having a common background as Air Force Veterans) I can say that Corey is passionate and dedicated to whatever cause or issue he is currently focused on. As such I have no doubt that he would take everything he could learn from the social media summit and immediately apply it to helping people better understand Parkinsons, raising community awareness and providing greater support networks for those affected by the disease. For evidence just read his personal blog The Crooked Path, which provides an insight, straight from the horse's mouth, that few would ever be willing to discuss, much less post online for the world to see. It's unfortunate that Corey has, by his own decision, decided to retire from his "day job" due to the effects of the disease, but fortunate to the Parkinsons' community as he now has the ability to put his full focus on bringing greater understanding, and hopefully greater research focus and funding, on combating this ailment. I've enjoyed working with Corey, and look forward to following his new career as a Parkinsons advocate. You're cleared for takeoff Corey! Have a great flight!

  • khowell
    khowell August 18, 2011 at 8:12 am   

    Corey has always been driven in all that he does and he has taken that committment, energy and intelligence and directed in such a positive way to fighting Parkinson's disease. Instead of simply accepting a diagnosis he has chosen to make it a mission to help educate and support others afflicted wiht this illness. His dignity, energy and passion in living a full life with Parkinson's is a true inpsiration.

  • limburger
    limburger August 18, 2011 at 12:57 am   

    Corey is the best advocate working for the Parkinson's Community, he is a leader, a warm caring people person; I add my vote for Corey to receive one of the scholarships. He will bring a lot of knowledge to the Social Media Summit.
    Helena Camps. PWP

  • Sgdykes
    Sgdykes August 17, 2011 at 8:30 pm   

    I worked with Corey for the past 5 years, and found him to be amazing in what he can accomplish. Corey is funny, articulate, clear-headed and makes everyone else feel better about themselves. You cannot find a stronger, more likable advocate.

  • kfgdavey
    kfgdavey August 17, 2011 at 6:18 pm   

    I and my family first met Corey in 1988 and, being new in town from Australia, we were struck by Corey's openness, intelligence and warmth. Needless to say I quickly became close friends with Corey and his family. I would have to say that when Corey rolls up his sleeves to pursue his goals, he doesn't hold back, and this is yet another instance where Corey sets personal standards and demonstrates determination that shines a beacon for the rest of us to follow. I admire his force of will and wish all the very best to Corey and his supportive network of family and friends in USA.

  • amyking40
    amyking40 August 17, 2011 at 7:21 pm   

    Thank you Kev. Miss you.

  • Craig Robinson
    Craig Robinson August 17, 2011 at 4:52 pm   

    I've known Corey for 17 years and couldn't agree more with the comments posted here about his intelligence, drive, and character. We've worked together as executives in two companies and Corey is without question a world-class talent. I also serve on the advisory board for the Alamo Area Parkinson's Support Group and want everyone to know that Corey provides a very real, yet very positive and approachable, example of how to deal effectively with whatever hand has been dealt in life. Corey has my deepest respect and admiration. I'm very proud to be his colleague and friend.

  • amyking40
    amyking40 August 17, 2011 at 7:21 pm   

    Thank you also Craig. Hope you are all well.

  • karlak
    karlak August 17, 2011 at 4:23 pm   

    Corey's willingness to share his journey is amazing, inspiring, and humbling! His honesty and openness can only help others tremendously - regardless of their condition or whatever they are facing in life. He is very deserving of this scholarship, and will be an amazing advocate for this community.

  • Anonymous
    Anonymous August 17, 2011 at 4:14 pm   

    Corey is an inspiring example of someone dealing with an unexpected diagnosis of Parkinson's disease with courage and determination. I have known him and his family for 5 years; I have been impressed by his quiet integrity, unselfishness and kindness to others. Since his diagnosis, he has shed a shy demeanor to become one who shares his life's difficulties with others, seeking to improve the lives of other Parkinson's patients and invite them to dialog. His leadership qualities are apparent; I know he will add much to the conference and will continue to be an outspoken advocate in the battle against this disease.

  • Diane65 Masters
    Diane65 Masters August 17, 2011 at 2:08 pm   

    There isn't anyone I know who is a stronger advocate for the cause. Corey deserves a lot of credit.

  • JohnBalod
    JohnBalod August 17, 2011 at 10:55 am   

    I was Corey's roommate in College (Hook'em Horns!) and he was a great guy at Texas and has only gotten better. He is more than deserving of the scholarship opportunity and would be a fantastic representative of t he Parkinson's community.

  • kimberlymurray
    kimb­erly­murr­ay August 17, 2011 at 10:05 am   

    Corey King is a phenomenal advocate for both those who have been diagnosed with Parkinson’s, as well as their family members and friends. His honesty and willingness to share is truly inspiring, and will be instrumental in raising awareness and providing hope. Corey King is succeeding at what we all aspire to do: making a difference.

  • DSC46
    DSC46 August 17, 2011 at 9:18 am   

    I worked with Corey at Southwest Research Institute, where he was known as a premier expert on computer networks and a superb manager. In addition to his first-hand experience with Parkinson's— and his skills in leading the regional Parkinson's support group — he would bring extraordinary technical knowledge about computers and social media to the Summit.

  • mking
    mking August 17, 2011 at 8:59 am   

    I have known Corey his whole life and have always seen him dedicate himself 100% to family, friends and his community. From his military service to his career in the private sector he has shown himself to be able, and anxious, to take the reins of leadership. He is a good man who will do great things in his pursuit to help others with Parkinson's.

  • Anonymous
    Anonymous August 16, 2011 at 11:41 pm   

    Corey is an inspirational and wonderful person, as well as a good man and a loving father. He provided my friends and I strength when we needed it most.

  • bthunker
    bthunker August 16, 2011 at 10:28 pm   

    Corey has an amazing outlook on life and most deserving of the scholarship. An investment in Corey is an investment in life. I had the good fortune to work for Corey running a busness unit in San Antonio. Although he was junior in age, his maturity and inovation was that of a seasoned professional. I always felt his positive approach and fresh look at endless challenges provided an inspiration to me and his entire workforce. That positive outlook continues today as he faces challenges I could not begin to understand. Corey is an inovator and always looking for a positive outcome of what ever is thrown at him. His blog is a testiment to this. This scholarship has your name on it Corey. Go get em!!

  • amyking40
    amyking40 August 16, 2011 at 8:51 pm   

    Thank you all so much for supporting my husband in his pursuit. He does deserve to win because he wants to use his knowledge and skills to help others. Blessings and peace.

  • jrpayette
    jrpayette August 16, 2011 at 8:35 pm   

    I have added my vote for you, Corey. Supporting you every step of the way. Keep doing great things to promote awareness. -Jennifer Ritchie Payette your Seneca Valley High School classmate

  • kl_king
    kl_king August 16, 2011 at 8:21 pm   

    Corey has the dedication and passion to use this scholarship to its fullest potential. Advocating and creating awareness are both a natural extension of himself. His creative genius and flair for writing are a gift. I'd love to see him receive this honor!

  • SolW
    SolW August 16, 2011 at 8:09 pm   

    I always knew Corey was a great person. All I can say is WOW. It takes a special person to put themselves out there the way Corey has. He is a true leader and go getter. He would be a great selection for this scholarship.

    All the best Corey.

  • jzjohnson63
    jzjo­hnso­n63 August 16, 2011 at 7:55 pm   

    Corey King is a very special man and someone most deserving of such recognition. I've known Corey for 15 years now and have always considered him one of the most intelligent people I had ever met and/or worked with. I rarely describe people as "brilliant" but Corey is just that. In addition, his passion for life, committment to family and humility set him in a very rare group of great leaders. I know Corey will always find a way to make a difference in this world and believe his truly greatest accomplishments are in front of him. V/r, Jeffrey Z. Johnson

  • ja
    ja August 16, 2011 at 7:23 pm   

    Corey is my son-in-law who is really like a son to me and I believe he is a very good candidate for the Mayo Clinic to consider for a scholarship. He has developed a passion for helping his "people", i.e., those who have Parkinson's, as an aggressive advocate in finding a cure to this devastating disease.

  • Israel
    Israel August 16, 2011 at 6:33 pm   

    I had the good fortune of meeting Corey at the PAN Forum in D.C. A truly inspiring leader with a passion for advocating for the PD community. Well-deserving of a scholarship.

  • szyclist1089
    szyc­list­1089 August 16, 2011 at 4:17 pm   

    You are a true leader, and I wish you all the best!

  • Kari Ulrich
    Kari Ulrich August 15, 2011 at 3:39 pm   

    Your story is inspirational and I think you would be an excellent choice for the scholarship. I look forward to reading your blog. Warmest Regards, Kari

  • ckingaapsg
    ckin­gaap­sg August 16, 2011 at 3:09 pm   

    Thank you , Kari. I hope to receive one of these scholarships to expand my network of contacts and do as much as i can while I can to help others like me (and myself, truth be told ;-). Thanks again for your encouragement -

  • Kari Ulrich
    Kari Ulrich August 26, 2011 at 10:56 am   

    Congrats on the Scholarship!!! I look forward to meeting you in October!!

  • ckingaapsg
    ckin­gaap­sg August 26, 2011 at 2:49 pm   

    You too, Kari - see you in Rochester!