Essential Thrombocythemia
By mabehl
March 6 at 5:35 pm
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1
My daughter is now 10 years old and was diagnosed with ET when she was 9. Her platelet level was up to about 1.6 million and is now on hydroxyurea. I was just wondering if any one else has had experience with this disease in such a young child. I am very uncomfortable with her being on this medication and the disease itself since it is so rare, especially in children. Any info would help.
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piglit March 6 at 6:14 pm0 Likes
Hi mabehl. I have not had any experience with a child as you are with your little girl, however have myself have had problems with a blood clotting disorder, My advice to you would be to make sure that you have a really good haemotologist and a good g.p. both I have and have so found this to be a great help to me over the past years. You will be in my thoughts and prayers, always here anytime if you need to talk Piglit
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