Chronic granulomatous disease
By taytesmommy
June 29 at 12:03 am
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My son has been recently diagnosed with CGD, are there anyone else with a child with CGD? I just wanted more info from a parent with a child suffering from the same condition.
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markpico July 1 at 4:07 pm0 LikesHI, I;m a 43 yr old w/CGD, I'd be happy to speak to you. Please feel free to email me and we can exchange phone numbers if you would like to. Mark,
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powderchick2 July 1 at 4:01 pm0 Likes
Hi. We have a 2 1/2 year old son who was diagnosed with CGD when he was 8 months. I and My husband would be happy to talk with you. We saw this post b/c we have a google Alert for Chronic Granulomatous Disease. You can email me and then I can share our phone #. Hang in there. Jennifer
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taytesmommy June 29 at 12:06 am0 Likes
This disease happens in one in a million so I'm hoping someone has some personal info for us!!
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cscnursegina June 29 at 9:36 am0 LikesI was diagnosed with a granulomanous liver disease… upon more investigation I also had a granuloma in the breast and in the lung nodules. I was diagnosed with sarcoidosis. Has that been considered as a diagnosis? I'm currently on remacaide now, not only for this, but also I have crohn's disease. These autoimmune disoders tend to run together.
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