Fibromyalgia

I have it also and i think pain calms down when i relax my mind and walk ,i want to try yoga i am sure it will help.

"A study published in the Journal of Pakistan Medical Association determined that vitamin D deficiency is frequently seen in patients diagnosed with fibromyalgia and nonspecific musculoskeletal pain."

Source: Pakistan Medical Association via http://vitamind3blog.com/2011/01/vitamin-d-de...

Hi, this is my first time on here. I am 33 and have had fibro since I was 21. I also have rheumatoid arthritis and have back surgery, and some other health problems. I have been disabled because of the pain for 12 yrs now. I was extremely active at 21 and all of a sudden I started getting horrible headaches, I couldn't pick my head up off the pillow, my whole body started to hurt and just got worse and I couldn't work anymore. It took a few months and many many doctors before i was diagnosed. I have been on just about every medication made i think! I did try savella but couldn't take it because it made my heart race, I have tachycardia and it made it worse. The only thing that has helped me is Lyrica I have been on it for years now with no adverse affects. I am afraid it isn't working as well anymore. It has helped to lessen some of my flare ups. Nothing has taken the pain away. I think we have to find ways to help lessen it and unfortunately live with it. You'll figure out easier ways to do things around the house. Instead of carrying my laundry basket I drag it down the stairs lol. You never really get use to the pain because it is constantly changing and for me getting worse. I am now dealing with neck pain and pain in my face. Trying to control the RA.Constant back pain. My fibro is just kind of always there my legs always hurt the worst. Does anyone else get affected by the cold weather? I don't know if it has anything to with the fibro or something else. Once it gets below 55 if I am outside for more than15-20 min my legs start hurting and will hurt for a while. Sometimes a day or two if it is really cold and I am out there longer. They think I have raynauds can it affect your legs? Sorry got sidetracked. Some things work for some people, you just have try, it may take awhile so patience is crucial for dealing with fibro. Hope everyone is having a "good" day!

Get regular massages from a therpist experienced in fibromyalgia. Also take 2 to 3 soaking baths (15minutes) with 1 to 11/2 cups of epsom salt.

Hi, RondaC here. I had Fibro for years all over my body to the point I could no longer be touched by my husband or anyone. I stopped shopping so no one would bump me. Tried medicines that did not work and made me feel worse. Did some research and found out about our diets and especially what the food industry is putting in our foods. Cut out red meat intirely for two months, felt better, kept it up for a year, felt much much better, went on the second year and no more Fibro. Doctors here in St. Louis said that really works for somepeople. It's the extra hormones they are putting in the beef. You can have chicken, fish and light on the pork, but no red meat. Now I can occassionaly eat a hamburger but there are slight pains in my body if I do. After it's gone through my system, I'm completely OK again. Also, spicy food and set it off and that includes katchup. I seem to do OK here. For me it was just the extra hormones in the beef. Hope this helps you and you are willing to take the two month trial. You'll feel a remarable difference in that time period if you are lucky one like me. Get Well Soon!

What is your diet like?

I am on a low carb high protein diet and have cut out all sugar, breads, pastas, potatoes , and starchy veggies etc. This is the only diet that helps with the fatigue, aches and pains, and brain fogginess.

Go to the mayo clinic!!! And try Savella and an exercise program. Glad to talk to you if you want.
Grammy

Hello I have Fibro as well as diabetics, kidney stones, frequent UTI's, IBS, depression and several other problems. I stay in pain and when I'm in pain my diabetics numbers go up! I have just started applying for my disability. I am 51 yrs old. Any suggestions?

Cut out all processed food, including bread, cake, biscuits, pastries, sweets or savory junk food. Increase your protein inc. beans, lentils, chickpeas, eggs, meat and some dairy (ideally fermented ie. yoghurt, not milk) and include in every meal and snacks. Protein is essential for the production of neurotransmitters needed to support depression and IBS, immune system for UTIs and to regulate blood sugar levels in diabetes. Drink minimum 2 liters water daily. Have Epsom salt baths (300gms salt) daily. Drink green vegetable drinks. All your conditions can be significantly reduced or possibly gone.

Hi dk,
How are you doing? I hope things are going well for you and that you are finding your way to the things that will help you the most. I hope you didn't get more confused and discouraged by all the posts!! :) Sometimes our wanting to 'help' can get a little overwhelming!!… just know you WILL be ok and find your own way to what works best for you!! I hope you have a really good weekend. Have fun and relax!

Hi Yeah this is a big problem with me how are u dealing with

Hi I have lupus and fibromyalgia. I was on savella but stopped it to try cymbalta which is working great!

Good afternoon all! I'm so glad to have found this site. I am so confused and I don't know where to stop or start. I have seen so many doctors and tried so many pills and I'm so frustrated. I'm afraid to quit taking medication becuase I don't know if it hurts or helps. If anybody can give me your two cents i will appreciate it. Currently I take tramadol, about 200 mg per day, for pain, cymbalta for pain, levothyroxine which is for thyroid. I want to stop some of this. I can't hardly stay awake anymore during the day and it's making work very very hard.

It is a very painful condition. I have had it for 15 yrs saw doc in Boston who specializes. I found helpful. Tramadol. And muscle relaxant take pain med if necessary. Most important is exercising. Whatever u can do.

Savlla is good but you also need to exercise
I swear by mayo clinic eval and suggestions
Biofeedback helps:along with occupational therapy techniques. Write me anytime or I am happy to call you.

I take 7000 to 10000mg of fish oil daily, 12000 mcg vitB12 sublingual each morning for energy, 5mg melatonin at night to help sleep, and 4 homeopathic magnilife fibromyalgia relief tablets daily. I am back to work and feel a lot better. I still have some pain, but it's not been debilitating lately. 2 yrs ago I was on Savella, Neurontin, and Ultram, but I got off the Rx's and went natural. The Rx's made me want to sleep all the time and didn't work as good.

so you have found that the b12 and fish oil have helped a lot? I have trouble sleeping a lot lately, I have taken valerian root with my melatonin

Yes, all of it. Valerian root works good too. I haven't taken it w/melatonin though, only by itself. I never eat fish, I hate the taste/smell, so maybe I was deficient.
4 yrs ago I was told I had polymyalgia rheumatica. I took prednisone for several yrs, but looking back now, it probably was the fibro. Terrible hip pain.

L Theanine (100mg) taken with Melatonin is also a good combo for a sleep aid.

Hey I suffering big time with the fibromyalgia its so painful how do you all handle it. I stop working and it have made me fail in school. I am not able to plan events

I am so sorry, Eliz… Today is one of those day's I call: "A day when my whole right side is shot down" …pain from R jaw line down through toes. I end up worrying about the jaw line pain, afraid there will be something major wrong with a tooth and will require a dental proceedure. :( My R neck hurts so bad…and all the trigger points all the way down…The one thing I know I have done that is different…eating WAY too much beginning Sunday (the 13th), far more meat than usual, and far more sweets than usual…and an elevated stress/level starting when I wake up and that usually wears itself away in several hrs… I know I have to keep AWAY from the computer in the mornings…I honestly believe there could be a connection between the severe fibro on the R side and hours of computer use…and I also am facing it is having a 'mental affect' on me, too. So beginning tomorrow AM, no computer until after lunch, and then limiting the amt of time on it. It is embarrassing to admit how addicted I am to the internet… and I am the only one who can 'break' this addiction and I intend to. (I am not saying it caused the fibro…had that long before I owned a computer) but I believe that lately it HAS made it worse. We are each different in what trips our trigger points, eh? Eliz, I don't take Rx meds, but maybe you might consider it…its whatever works that makes it "Right" for any one of us.

I take cymbalta, tramadol and placquenil. I also have polyarthritis. I do take magnesium supplements, D3 which most people with Fibro are low in. also B6 at bedtime to sleep. I do take other vitaimins just to stay as healthy as possible.

I was at mayo most of December. And I also have FM. I've been on savella and it worked well for me in terms of sleep and pain. However I'm having severe stomach/intestinal issues so they took me off to see if it mite be the cause. Does anyone else have gastroporisis w their FM? This truly has been a real struggle for me! If u want to talk u can email me at nuni0209@gmail.com

Is anyone taking savella?

I can't take it. It makes me sick

Hi DK
I'm on zoloft but am interested in how the savella works for you? I had a nearly immediate positive response to the zoloft, but I am in no way typical.

I think Savella is one of those new serotonin altering meds but I could be way wrong. Maybe Momentum could post one of his researches?

How are you sleeping? Is it restorative sleep? I am much better regarding pain level and mental acuity when I have good sleep. I take ambien and hydroxizine for sleep, oh and pramipexole for night-time restless legs.

I have found that after getting in a whopping flare I need to prioritize getting my sleep on track and then the other symptoms are easier to manage.
BTW I was diagnosed with Lupus for about 2 weeks and then settled on FM as well.

Keep us posted?
LizKat

Hi there, dknnkn :)
I hope you are feeling good today. For me, Today is one of those rare days when I have a full blown fibro attack…(every muscle in my body hurts including facial muscles and in fingers and toes!) the good news is: I know it won't last. The only thing that helps me is taking MSM caps together with Vit C…and several different homeopathics. Kerri Lynn gave you excellent suggestions as to how to take care of yourself.
Be careful what you believe and what you buy into… and do NOT think of it as something you are forever stuck with…a positive mind set is crucial. I can go for WEEKS without any trace of fibro. When mine started it they called it "arthralgia"…because they didn't have a label for it…so thought it was like arthritis of the muscles (and it sorta is!) … I used to have continuous dull pain on my right side, from R jaw line to R ankle…Malic Acid helped me a LOT in the beginning. I believe what brought on my attack today was two things: been through shock and stress because of death of a dear friend…and I ate two 7-Eleven donuts yesterday evening. (I really am serious that certain sugars effect me!)
Sometimes you just have to experiement and see what works best for you. Wishing you all the good luck in the world!

Now remember I am new at this :) What is MSM… I also got my xray and blood work back today and they said I had early Osteoporosis… Can't win :(

Bettyann, I am addicted to donuts. They are my comfort food, I know how awful I will feel when I eat them, but sometimes it's worth it. I try to take a supplement that helps aid in digestion…it helps a bit. Sugar and white flour really get me, but I crave them so much when Im sad or stressed.

i think we all do I have always been a comfort eater

I can relate to that! :) Next time I think I will stick to ONE…instead of TWO donuts! :) I should probably do extra Vit C…helps alkalize he system… oh sigh…

just buy the biggest one Betty then you won't miss not having two lol

HA!!! Yup…there we go!!

sounds like me…! heh!

lol do you want me to send you another expresso sounds as if you need one

LOL it's good to start the day on a happy note

How much extra vit C do you take? I would like to try that & see if it helps. I take 500 every morning and my multi vit has C in it. I also take 800 biotin, Super B stress complex,1000 fish oil, 2000 vit D, 600 calcium 2x daily, 1 mg folic acid and probiotics. Any other reccomendations?

Funny momentum…

I am a big believer in MSM —two 1 gram pills with 1 gram Vit C.(twice a day on an empty stomach)..I should take it more often, but it usually gets me back on track with fibro. You can take many GRAMS of Vit C and it can only do you good. I am taking fish oil again together with CoQ10…and it really helps get rid of IBS pain (which can really be knocked for a loop with a fibro attack :( …but anyhoo. I also take homeopathics: Bryonia Alba and Arnica Montana… to me they work like a 'quick fix' and quickly reduce the pain. Work SO much better than Advil which doesn't even seem to touch the pain. Taking two or three 50mg Vit B complex per day rally is good for the ol' nerve and yup, the Folic Acid and probiotics…excellent.

I've seen Arnica at the compounding pharmacy and almost bought it several times, I will have to try it, does it have to be Arnica montana? Or is any arnica ok? I have to introduce 1 thing at a time soI think I will start with Arnica.I've got my IBS controlled pretty well finally. I take 1/2 a citrucil tablet at night & if I get a flare up & pain simethicone helps. Have you tried acupuncture? I have heard it's very helpful.

You know I had acupunture too and it did wonders as well

Momentum and Piglit, it is really GOOD to hear about your good experience with acupuncture!! Thank you both for sharing that.

Acupuncture is wonderful and helps with stress as well.

sorry am I having a blonde moment what's a pear tree got to do with it. I just know a piglit's about to be laughed at lol

There was a partridge in that tree too lol

Oh yeah!now I do. Thanks archie

You'll be laughing even more soon as I still don't get it lol

The problem here is I can really relate tho that show lol

I am happy you are 100% free of pain & 100% healthy, but there is no cure for Fibromyalgia. I don't think it is appropriate to encourage people by offering to tell them about these systems you BOUGHT. I noticed in another post you mentioned a book you had written. It appears to me that you are selling something, even if your approach is subtle.

I will never sell anything to people that are suffering or in pain. My experience is that it is easy to cure Fibromyalgia and many other health conditions people are suffering from. So please never judge and say anything else. Because when I say this, it is based on what I have of knowledge and experience, not anyone else. I take people very seriously, and will never sell the book (it is in Norwegian so it will not be for sale to people here anyway) or anything else. Many people would do exactly what you did, telling that it appears to you that I am selling something! In my life I have helped many people healthy from pain, cancer, Fibromyalgia without charging for it. It gives great meaning to have the knowlegde and power to help, so I will be happy to be respected for knowing how to cure Fibromyalgia and quite a lot of the Cancers. Thanks, Falke.

Ive been getting pain under my arm pits and left shoulder and sometimes a burning sensation in my left ear .can anyone help bing to doc and did all types of test but nothing found.

Please tell me how and what are your credentials I would love to be cured of daily pain and nerve damage pain. Jodi.