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Started by Susan (@susan1) · Jul 7, 2011

Psoriasis and Psoriatic Arthritis

Hi. I'm new to the community and would like to connect with others who are dealing with one or both of these conditions. Was dxd with PsA around year 2000. Psoriasis was mild at that time. 2003 used Enbrel for a couple years and when it quit working for me switched to Humira. Now psoriasis is pretty bad and includes pustules sans pus on hands and feet and toenail involvement - they all came off! - ! Mayo dermatologist says Humira can cause the false pustules and that I ought to consider Stelara. I invite you comments and knowledge based on your personal experience. Thanks.

Skin Conditions autoimmune diseases

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aclowe01 (@aclowe01) · Jul 15, 2011 · #

I have had Psoriasis and PSA for over 30 years. Have you tried any homeopathic remedies or a change in diet? I recently found that eliminating Night Shade vegetables helps in controlling my sysptoms and works for RMA suffers as well. The spice turmeric helps control the itching and releaves systoms. I make my own capsules to cut down on the cost.

zzzdebbiedeb (@zzzdebbiedeb) · Jul 17, 2011 · #

what r night shade veg and what does tumeric taste like?

aclowe01 (@aclowe01) · Jul 18, 2011 · #

Potatoes, tomatoes, sweet and hot peppers, eggplant, tomatillos, tamarios, pepinos, pimentos, paprika, cayenne, and Tabasco sauce are classified as nightshade foods. You can Google to get more information. It all refers to RMA but it worked for me to eliminate these items.
turmeric not a pleasant tasting spice taken alone. If you add salt it helps to make it more palatable. 1/4 teaspoon twice a day helps. you will have to judge on your own how well it works. I buy Turmeric powder at the local natural food store and make my own capsules.
I have also switched to neem soap and pure lye soap - no additives or fragrances - helps too. Neem soap - brand Margo - can be found at Indian stores.
I had a seizure while taking Enbrel so I'm constantly looking for more natural altrenatives to controling my Psoriasis.
Hope this helps!

Frances K. (@francesk) · Jul 22, 2011 · #

I recently tried Emu oil (from the health food store). It's not vegetarian, as it's from an Australian bird. But it's anti-inflammatory and soothing. It definitely seemed to help reduce the sore, red patches on my elbows. I don't know if this is/was psoriasis, but it might be, because my mother has the condition.

The brand, "Kalaya" says on the label that it's for dry skin, eczema and inflamed skin.
Perhaps it would help. Not expensive, as you only use a very small amount at a time.

fl_mommy (@flmommy) · Jul 16, 2011 · #

I was diagnosed with psoriasis as an 8 year old child over 25 years ago. I have tried all of the biologics except for Stelara. I am currently on Enbrel after having tried it about 10 years ago and having no success. This time my dosage was increased and I have been completely clear for over a year. When it quits working (they all seem to after a while) I may try Stelara. My only concern is using a medication that has been on the market for such a short time.

I also take Nordic Naturals fish oil each day and try to control my stress level by doing yoga. I hope you find something that works for you. Psoriasis can be an isolating and depressing disease. Good luck!

TamiESRD (@tamiesrd) · Jul 18, 2011 · #

I was diagnosed with psoriasis at the age of 7 and by the time I was fifteen it was pretty severe. In 2000 I spent 21 days at Mayo for their Gueckerman treatment. It was very successful, but short lived. Luckily in 2002, I think, Soriatane came on the market. Since I had had my tubes tied and had NO plans to have any other children, we decided to try it. I was very excited by the results. I wasn't clear, but it was so much better than what it had been. In 2004 they introduced Enbrel and I went on dual therapy. For me, a combination of Soriatane and a biological like Enbrel or Humira works best. I was on Enbrel for five years but it slowly stopped working as well so they switched me to Humira.

Regardless of whether it was Enbrel or Humira, neither one has been effective without the Soriatane. Don't get me wrong, they work really well and I'd be pleased as punch with the results of each, taken by themselves, but with them together, I've been able to experience a "normal" life for the past 7 years and I wouldn't give them up for anything. I will say this though, for PsA, Soriatane has no effect. I truly cherish the way my joints feel on Humira and I can tell within weeks if I miss a dose!

godey1863 (@godey1863) · Aug 7, 2011 · #

I was dxed with PA about 6 yrs ago when I had my first knee replacement. I was rather adamant at finding why I was having my knee replaced in my 40s. Finally found a dr who dxed me with PA (I did not have any psoriatic lesions at that time so difficult to dx). I have tried Humira, enbrel, remicade, methotrexate, but am now on Rituxan, Plaquenil for PA. Have had another knee replacement and cervical fusion on C5 and C6 and just in May of this year had a laminectomy due to bone spurs again inpinging the spinal cord and causing issues with walking. It has been a rough road having 5 major joint surgeries in 6 yrs. I would hope I could get the next surgery free! ha ha... this last surgery has definately been the most painful, and was told recently it may take up to a year. ughhh...
It is a very painful disease, and can be very disheartening when one cannot be as active due to the pain. Life is different now, but even with this disease we can still live to the fullest. God is with us each day, and I find that his mercy and grace enables me to withstand the pain and look at life in a precious way. My life goal is to encourage anyone else with this disease to live each day to the fullest, and be thankful for the blessings you have. If we look beyond our pain, there is always hope. wld love to hear from others with this disease, to encourage along the journey.

KarenR (@karenr) · Aug 23, 2011 · #

Hi Susan. I also have been on Enbrel on and off since it came out. I haven't tried Stelara. Do you have to take Methotrexate with it? I cannot take Methotrexate because I also have Hepatitis C. I have developed pustules on feet. It is so painful.

Ista (@ista) · Sep 1, 2011 · #

My husband has had psoriasis for a long time. He would go to the dermatologist and she would give him topical treatments, ointments and such, nothing helped. She would shrug and say, "It's made worse by stress. Stay away from stress."

Stress. TREAT THE STRESS!I started researching anti-depressants and psoriasis, the idea being to treat the source not the symptom. I came across a study that found good results with Buproprion (it since has come to mentioned on Bu?roprion's Wikipedia page.

My husband has his own firm and things have been rough the last few years. He's been worried, anxious, depressed. His father died. Then he was diagnosed with sarcoidosis, an auto immune disease. When I mentioned it to my psychiatrist (I have Bipolar Disorder), he said without blinking an eye, "he should be on an antidepressant!"

I very craftily approached my husband about the fact that my pdoc said he should be on AD if he has sarcoidosis. I mentioned that this one particular one might help his psoriasis. He said yes.

It has been 11 months now. He takes one pill, 150mg a day. The psoriasis is down to simply dry hands. He is so pleased-- and I think the anti-depressant is very helpful for how he feels about life. The sarcoidosis cleared after a year.
I have no idea if this will work for everyone, but for us it has been a rousing success...so far...fingers crossed...

Peace Keeper (@peacekeeper) · Nov 14, 2011 · #

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